About the Toolbox

The Patient Experience Mapping Toolbox is a set of publicly available resources to help researchers engage and document patients’ experiences before getting a diagnosis, while getting a diagnosis, and living with a diagnosis.

The Patient Experience Mapping Toolbox was developed to help researchers capture patient experience data more holistically and in a standardized manner across chronic diseases. The Toolbox includes project planning and data collection tools. All patient-facing tools were reviewed externally by health literacy experts and refined through patient interviews. To encourage uptake, the Toolbox is made available free for public use.

Watch the introductory video below to learn more.

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