Building Capacity for Patient Engagement in Real-World Evidence Development Advisory Committee

  • Vanessa Boulanger, Director of Research Programs, National Organization for Rare Disorders
  • Susan dosReis, PhD, Professor and Vice Chair for Research, Pharmaceutical Health Services Research, University of Maryland School of Pharmacy
  • Jennifer Graff, PharmD, VP, Comparative Effectiveness Research, National Pharmaceutical Council
  • Jennifer King, PhD, Senior Director, Science and Research, Go2 Foundation for Lung Cancer and Steering Committee Member, Reagan-Udall Foundation’s Big Data for Patients (BD4P)
  • Danielle Lavallee, PharmD, PhD, Research Associate Professor in the Department of Surgery and the Associate Director for Patient and Stakeholder Engagement for the Comparative Effectiveness Research Translation Network, University of Washington
  • Robert N. McBurney, PhD, Chief Executive Officer, Accelerated Cure Project for MS iConquerMS Patient-Powered Research Network (PPRN)
  • Debbe McCall, MBA, Founder and Owner, Health eHeart Alliance (Chair Emeritus) and Rowan Tree Perspectives, LLC
  • Lucinda Orsini, DPM, MPH, Associate Chief Science Officer, International Society for Pharmacoeconomics and Outcomes Research (ISPOR)
  • Theresa Strong, PhD, Director of Research Programs, Foundation for Prader-Willi Research