Director, Science and Policy Communications, Immune Deficiency Foundation

Do you have a passion for translating complex information for a variety of audiences? Are you an experienced communications professional who thinks strategically while maintaining your ability to respond to immediate issues? Do you thrive in a remote but collaborative environment? Are you passionate about growing a rare disease community focused on diversity, equity, and inclusion? Then we invite you to join a dynamic team focused on empowering a community through research, advocacy, and education. 

The Director of Science and Policy Communications is responsible for protecting the integrity and enhancing the accessibility of information shared by IDF, while ensuring IDF stays on the leading edge of innovative treatments and medical advancements. This position oversees written content development for IDF publications, online articles and reviews communications to support the advancement goals of the organization. 

This position has supervisory responsibility and manages two other communications positions. The ideal candidate will have a Master’s degree or equivalent experience in communications, scientific writing, and publication management in addition to healthcare communications and nonprofit management experience. While this position has the option to be fully remote, we prefer candidates on the East Coast. 


The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency through fostering a community empowered by advocacy, education, and research. There are approximately 250,000 people diagnosed with PI in the U.S., and thousands more go undetected. 

IDF seeks to ensure that everyone in the U.S. affected by PI has a fully informed understanding of the PI diagnosis that affects them, all available treatment options, the expected standard of care, and all of their opportunities for connection and support within the PI community. Our three strategic priorities are to grow the community of  those affected by PI threefold over the next five years, remove disparities in diagnosis and treatment to promote more equitable outcomes for all PI patients and ensure that our community better reflects the U.S. population. 

For full-time employees, we offer medical and dental benefits, generous leave, a flexible work environment, a retirement plan with employer match, employer-paid live and long-term disability plans, educational assistance, and funds for professional development. 


We are rare, powerful, and inclusive. Like the stripes of a zebra, no two people are the same. At IDF, we celebrate this uniqueness every day. An inclusive, diverse, and fair workplace makes our community more powerful. The Immune Deficiency Foundation is proud to be an equal opportunity employer.

More Information

To apply send your resume and cover letter sent to [email protected] with “Director, Science and Policy Communications” in the subject line.