The American Association on Health and Disability (AAHD) is a cross disability national non-profit 501(c) (3) organization dedicated to promoting public health initiatives for children and adults with disabilities. AAHD accomplishes its mission through research, education, policy and public awareness efforts at the federal, state and community level. AAHD strives to reduce health disparities in people with disabilities, advocate for full community inclusion and accessibility. The official journal of AAHD is the Disability and Health Journal (www.disabilityandhealthjnl.com).
A major initiative of AAHD is the Disability Community Engagement Partner Project, funded by the National Institutes of Health All of Us Research Program. The All of Us Research Program is inviting one million people across the U.S. to help build one of the most diverse health databases in history to foster research that improves lives and expands individualized health care. The major goals of DCEPP are to increase awareness and recruit adults with a range of disabilities into the All of Us program and facilitate interest by disability and health researchers in the program.
AAHD’s Disability Community Engagement Partner Project (DCEPP) follows the All of Us Research Program’s Community and Participant Engagement Framework that includes Outreach and Awareness activities (interactions focused on fostering trust, such as providing materials and information to an audience to learn about research, precision medicine, and the All of Us Research Program) and Education and Access (activities that foster education and build upon efforts in outreach and awareness to promote the understanding of participation in research).
Principal Duties And Responsibilities
AAHD is recruiting a full-time Engagement Coordinator to support DCEPP event and programming development. Position responsibilities will consist of the following:
- Assist the DCEPP team in developing engagement strategies and education/training activities that result in increased knowledge and promote enrollment of the disability community in the All of Us Research Program.
- Assist in developing communication and outreach content, key messages, and communication assets related to DCEPP programing.
- Participate in the DCEPP Participant Engagement Working Group.
- Facilitate meetings of the Disability and Health Event subcommittee, including playing a leadership role in curating a disability and health webinar series, reviewing proposals for project-sponsored events following established selection criteria, participating in Community of Practice meetings with DCEPP national and local partners, serving as the lead point of contact with All of Us Consortium Partners interested in collaborative events, and participate in and/or conduct project outreach and education events.
- Perform relevant administrative tasks related to potential participant engagement and education/training activities, contributing to project monthly reports and continuation applications, and completing event metrics reporting in Google Analytics.
- Other tasks as assigned.
Qualifications
- 3-5 years’ experience in event planning, partnership development, and communications
- Bachelor’s degree in health, public health, communications, or related field
- Graduate degree/ Experience in disability related fields preferred
- Understanding of the different models of disability
- Understanding of health equity with knowledge of how health is affected by social determinants and other lived experiences at the intersection of disability and other identities.
- Proficient in using Microsoft Office, Zoom, Adobe Acrobat, survey tools and other applicable software programs.
- Excellent organizational, interpersonal, and communication skills, including public speaking.
