Executive Director, National Blood Clot Alliance

The National Blood Clot Alliance (NBCA) seeks an experienced, high-energy leader with excellent proven fundraising, communications, and management skills. NBCA is a patient-led voluntary health advocacy organization dedicated to advancing the prevention, early diagnosis, and successful treatment of life-threatening blood clots – the often-unrecognized cause of death in strokes, heart attacks, cancer and childbirth. For the past 15 years, NBCA has created and carried out programs that build public awareness, educate patients and healthcare professionals on the signs, symptoms and prevention of blood clots and clotting disorders, and promote supportive public and private sector policy. NBCA combines the unique perspectives of healthcare providers, individuals afflicted with clotting disorders and community leaders.

Reporting to and working with the Board of Directors, the Executive Director provides direction and leadership for the organization’s mission and vision, represents and speaks for the organization and its work, and manages day-to-day operations to achieve the strategic direction set by the Board. The ED is responsible for both internal and external relationships, including creating a positive work culture and philosophy; maximizing the use of available personnel and resources; and establishing, maintaining, and updating office procedures. The ED will work with the Board to chart the future direction of the organization.

Principal Duties And Responsibilities

  • Working with the Board to implement policy and operational guidelines to achieve the goals of the organization
  • Maintain appropriate boundaries between Board and ED or staff responsibilities;
  • Provide visionary leadership for the organization, along with strategic thinking to translate that vision into action;
  • Maintain an effective budget process and a complete understanding of the organization’s financial position and outlook, and ensure fiscal responsibility and security;
  • Maintain current funding streams and identify and implement new fundraising strategies;
  • Represent NBCA to various audiences and maintain sound relationships with partner organizations, funders and supporters;
  • Support the Board in its governance role and foster its ongoing development; keep the Board fully informed (on a timely basis) of internal conditions, significant issues, and important external developments affecting the development and delivery of programs and services; and
  • Oversee day-to-day operations and ensure that NBCA maintains its status as a well-managed, highly respected organization;
  • Oversee the work of the staff, set work priorities, and maintain a positive work environment.

More specifically, the Executive Director will:

  • Monitor and oversee financial management and fundraising
    • Ensure development of the annual programmatic budget and narrative explanation for Board approval;
    • Oversee development, updating, and monitoring of the strategic and business plans;
    • Identify, prioritize, and provide advice and counsel to aid the Board in assessing potential fundraising alternatives;
    • Maintain relationships with funding sources and prepare funding proposals; and
    • Develop and nurture funding sources beyond those traditionally relied on by the organization. 
  • Manage the staff
    • Ensure appropriate staffing consistent with organizational needs and within the constraints of the organization’s physical and financial resources;
    • Update and maintain the Personnel Policy & Procedure Manual as needed;
    • Develop and maintain appropriate job descriptions for all staff;
    • Recruit, select, orient, and provide training for new staff and continuing training for all staff; and
    • Supervise and conduct evaluations of staff. 
  • Develop, plan, and deliver programs and services
    • Develop programs and services in alignment with the strategic plan;
    • Monitor programs and services to ensure quality and timeliness, compliance with criteria established by funding sources, and consistency with the mission and goals of the organization;
    • On request of the Board (and other entities or individuals as applicable), and at least annually, prepare and provide summary reports of programs and services, including recommendations for future change to accord with the organization’s evolving mission needs or to improve program or service effectiveness; and
    • Regularly obtain quantitative and qualitative feedback about program and service delivery.
  • Establish, maintain, and advance community relations and public communications
    • Initiate and develop relationships with other groups involved directly or indirectly with the organization’s mission and goals, including (but not limited to) provider, clinician, and academic groups, other non-profits, and potential funders;
    • Undertake activities that enhance the visibility of the organization (e.g., conferences, collaborative projects); and
    • Develop and maintain an active and effective public communications program, including web-based information and training and social media.

Leadership Outlook and Near-Term Priorities

The Executive Director plays a variety of leadership roles both inside and outside the organization.  NBCA is increasing its focus on public awareness and promoting supportive public and private sector policies, as it continues successful patient education and healthcare professional training programs. The organization has some ongoing funding commitments; however, the new ED will need to focus not only on maintaining (or increasing) current funding but also on growing future funding through expanding the pool of potential funders, particularly focusing on private sector funders. The ED must have (or develop)  an understanding of the issues facing current blood clot patients as well as those who may be at risk for developing clotting disorders and establish and maintain close, collaborative relationships with policy makers in the public and academic sectors knowledgeable about and active in these areas.

The priority responsibilities of the new ED for the first 12 – 18 months will be to:

  • Gain a quick and thorough understanding of the organization and its business model, systems, and culture and the roles and responsibilities of staff members;
  • Develop trust and excellent working relationships with all stakeholders, including the Board, staff, advisors, and funders;
  • Create and develop an implementation plan for the recently approved strategic plan, including procedures to monitor, evaluate, and update the strategic plan; and, with the Board’s advice and assistance as appropriate, carry out that plan.
  • Create and implement a fundraising plan and structure, including identifying and securing new funding, with a special emphasis on diversifying funding sources;
  • Update the employee manual to reflect clear and current employment and rights standards.


  • Ideal candidates for this position will share our commitment to NBCA’s mission and will bring a variety of experiences and attributes to NBCA, including:
  • Successful leadership experience in a non-profit organization, including at least five years’ professional experience of progressive leadership and management responsibility;
  • Knowledge of leadership and management principles as they relate to non-profit/voluntary organizations;
  • Experience in, and knowledge of, the fields of healthcare and health policy; understanding of national health policy issues, their interaction, and their socioeconomic and political environment;
  • Proven successful experience with non-profit fiscal management, budgeting, and operations, including responsibility for developing and managing a programmatic budget;
  • A successful track record in fundraising and developing relationships with funders and the ability to identify new revenue streams;
  • Experience in grant writing or supervision preferred;
  • Proven networking ability, exceptional interpersonal skills, development and understanding of complex relationships, and the ability to engage a diverse group of stakeholders;
  • A keen understanding of the use of technology in modern day non profit work; both from an operational/cost saving/productivity standpoint but also to be used to enhance fundraising capabilities
  • Ability to provide visionary and strategic leadership and translate that vision into measurable strategies and concrete actions that advance the mission;
  • Well-developed written and oral communications skills and style;
  • Skill as a facilitator leading and mediating conversations with disparate groups;
  • Proven project management skills;
  • Well-honed leadership skills and style, including diplomatic assertiveness, credibility, integrity, flexibility, courage, curiosity, and a positive affect;
  • Familiarity with federal legislation applicable to nonprofit organizations including, but not limited to, employment standards, human rights, charities, taxation;
  • Proven experience and understanding of the use of web-based and social media tools for educational, awareness, and fundraising purposes;
  • Proven skill in management with the ability to oversee organizational workload planning and management, the capacity to delegate, and a focus on creating a team atmosphere; and
  • Successful experience supporting a board of directors in its governance role, fostering its ongoing development, and keeping it informed about internal conditions and external developments.
  • A Bachelor’s degree is required; a Master’s or other relevant advanced degree is preferred.

Salary will be commensurate with experience. Relocation assistance is not available.

More Information

To apply, e-mail a resume, cover letter and salary requirements to: [email protected] (e-mail applications are required). The NBCA is an equal opportunity employer. Applications from women and minorities are encouraged. Finalists will be asked to make a personal presentation to the Board, which may be virtual.