Manager of Health Education, Osteogenesis Imperfecta Foundation

Location: Gaithersburg, MD (Remote three days per week)

A full-time position focused on providing information and resources to families and individuals living with osteogenesis imperfecta, their loved ones and medical professionals.

The Osteogenesis Imperfecta Foundation has an opening for a manager of health education to help promote and improve the health and quality of life of people living with this rare genetic disorder by providing medically verified information and creating new educational programs in a variety of formats. Visit for more information about OI.

You would be joining a team of professionals dedicated to the mission of the OI Foundation and the people we serve.  The open position is based in the OI Foundation’s national office in Gaithersburg, Maryland and offers a generous benefits package with three days per week remote work option.

The Manager of Heath Education will answer questions about OI and serve as a resource to the patient and professional communities. The Manager of Education will oversee education programs and resources including virtual and in-person clinic town hall meetings, held twice annually, mutual support programs for patients, and online educational resources.

Principal Duties And Responsibilities

  • Prepare and distribute educational materials that reflect the many needs of people with OI
  • Prepare, update, and distribute education materials for a variety of medical professionals including physicians, nurses and social workers including toolkits and factsheets
  • Maintain databases including the clinic directory, mailing lists, telephone networks and other information to facilitate the functioning of the health education programs.
  • Monitor OIF social media sites to ascertain types of information constituents are seeking and engage when appropriate.
  • Represent OIF at meetings and activities as assigned that will increase the visibility of the organization
  • Make recommendations on innovative ways to reach various parts of the OI community – webinars, etc.


  • Excellent oral and written communication skills.
  • Excellent organizational skills and ability to manage multiple ongoing tasks
  • Must be able to work in a team environment.
  • Travel will be required 2-5 times per year
  • Position will allow for three days per week remote work and two days in-office at the Gaithersburg, MD office
  • Ability to respond with empathy and professionalism to community and stakeholder inquiries
  • A Bachelor’s Degree and two years of experience preferred working with a patient advocacy or voluntary health organization.

More Information

The Osteogenesis Imperfecta Foundation is an Equal Opportunity Employer.  Prospective employees will receive consideration without discrimination because of race, color, religion, gender, national origin, age, disability, marital or veteran status, sexual orientation, or any other legally protected status. Join us as we work together to find new and improved treatments for people living with OI.

To Apply:
Questions, resumes and CVs should be sent to: [email protected] no later than October 21, 2022.