The Senior Manager of State Relations & Policy holds primary responsibility for managing, coordinating and implementing the Foundation’s state-level policy agenda including the Seizure Safe Schools Act, medical cannabis and other access to care, disability rights and research and innovation issues. The Senior Manager provides strategic direction and state-level resources to the Foundation’s chapter and affiliate network across the country, with support from the Advocacy Coordinator. This position is well-versed in state-level legislative and regulatory processes and represents the Foundation on coalitions that coordinate state-level priorities nationwide. The Senior Manager coordinates with the Manager of Grassroots Advocacy & Engagement on volunteer engagement and communications related to state-level policy and with the Senior Director, Federal Relations & Policy to ensure federal and state positions are aligned, providing support on federal work as needed. This position reports to the Vice President of Government Relations & Advocacy.
Principal Duties And Responsibilities
- Manages state-level policy priorities including the Foundation-led Seizure Safe Schools initiative, medical cannabis and other access to care, disability rights and research and innovation issues across the country.
- Advises the Foundation’s chapter and affiliate network on state-level policy priorities, providing strategic direction and resources with support from the Advocacy Coordinator.
- Oversees tracking and analysis of state-level legislation, regulation and other policy proposals that would have an impact on the epilepsy community and development of related state-level letters, testimony, regulatory comments, legislative updates and position statements.
- Coordinates with the Manager of Grassroots Advocacy & Engagement to engage volunteer advocates on state-level policy and develop related action alerts, articles and op-eds.
- Represents the Foundation on coalitions that coordinate state-level policy nationwide.
- Coordinates with the Senior Director managing federal policy to ensure positions are aligned.
ADDITIONAL DUTIES AND RESPONSIBILITIES
- Provides support on federal policy work—such as representing the Foundation on Capitol Hill and in national coalitions—as needed.
- Supports planning of and resource development for the Foundation’s Teens Speak Up! and Public Policy Institute annual advocacy conference and Capitol Hill day as needed.
- Bachelor’s degree in public policy, health policy, government or political science required. Master’s degree or law degree preferred.
- Three to five years professional experience in health or disability policy and/or legislative advocacy; state legislative office and/or non-profit experience preferred.
- Knowledge of and experience with state-level legislative, budget and administrative processes.
OTHER SPECIFIC KNOWLEDGE, SKILLS, ABILITIES, CERTIFICATIONS, LICENSES
- Understanding of, or desire to learn about, epilepsy and its impact on individuals and families.
- Knowledge of health and disability policy issues.
- Strategic vision for how to advance state-level policy priorities nationwide.
- Strong policy analysis skills, as well as experience negotiating and working on legislation and legislative text with diverse stakeholders.
- Knowledge of state and federal medical cannabis issues, including how those laws intersect; knowledge of emerging medical cannabis issues a plus.
- Excellent interpersonal and relationship-building skills to facilitate work with volunteers, coalitions, government offices and the Foundation’s chapter and affiliate network.
- Flexibility and adaptability skills to manage evolving political and policy landscape.
- High level of organization and ability to manage multiple projects and deadlines at once.
- Demonstrated ability to be a strong team player, as well as to take initiative and work independently.
- Ability to effectively communicate and advocate in support of the Foundation’s public policy priorities.
- This position has no supervisory responsibilities/no direct reports.
TRAVEL, WORK ENVIRONMENT, AND PHYSICAL DEMANDS
- This is a full-time position, working 35 hours per week, generally Monday-Friday, 9AM-5PM. The employee is expected to be flexible, as needed.
- This position is eligible for telework from an approved alternative worksite.
- In the selected candidate resides in the Washington, D.C. area, the position may attend in-person meetings on Capitol Hill and coalition meetings once they reconvene safely.
- This position is required to participate in all team and global staff meetings.
- Travel may be required up to 2-4 times/year.