VP, Partnership & Network Development, Beyond Celiac

Location: Corporate Office/Remote Possible
Reports to: Chief Executive Officer

The VP, Partnership & Network Development will lead the creation, funding and growth of a diverse portfolio of external collaborations to support the Beyond Celiac scientific strategy and overall mission of accelerating research as well as the development of and access to treatments and a cure for celiac disease. Through a focused and strategic outreach to pharmaceutical, biotech and diagnostic companies,
government agencies, academic research institutions, advocacy organizations, and other influences, the incumbent in this role will serve as a catalyst for the formation and effective engagement of working groups, consortia, symposia, and other collaborative networks and events to advance the scientific priorities of Beyond Celiac and drive the funding diversification needed to implement the overall science plan.

The successful person in this role will be a consummate connector, someone who can map the landscape and system networks of those individuals and organizations with the potential to impact the celiac disease space and bring the right people together in optimal ways to drive positive change and accelerate treatments and a cure. The ideal candidate will have multi-layered experience in a variety of for-profit and/or non-profit settings, someone who thrives working in a fast-paced environment and is a
results-oriented professional with vision, creativity, and an entrepreneurial spirit. S/he will be a relationship builder who is both energetic and mission driven. This is an externally-facing position focused on building and executing our scientific partnerships strategy. It is an ideal mid-level career opportunity for someone seeking to build relationships in a dramatic way across various sectors, bringing together the right individuals and organizations to have both a near- and longer-term impact on diagnosis and treatment of celiac disease.

The VP, Partnership & Network Development will report directly to the Chief Executive Officer, with a dotted line to the Chief Scientist and Strategy Officer (CSSO), and will supervise 1-2 staff positions. S/he will partner closely with the CSSO, work effectively with members of the science team, and act as key connector between the science and development teams. The person in this position will also play a key role in building and strengthening relations with the NIH, the FDA and other governmental entities, helping to refine and implement the Beyond Celiac scientific advocacy strategy.

Principal Duties And Responsibilities

While not limited to the following, some of the key job duties and responsibilities of this position include:

  1. Map out the celiac disease influencer landscape to identify candidate organizations, influencers and collaborators to create strategic networks and partnerships that can enable and advance the Beyond Celiac scientific plan.
  2. Lead all aspects of the partner engagement process, including development of mutually beneficial partnership proposals and leading presentations to key internal and external stakeholders. Cultivate, renew and grow strategic relationships and partner contributions.
  3. Create and manage a portfolio of partnership platforms (e.g., working groups, pre-competitive consortia, alliances, events, etc.), convening and engaging participants from various sectors (i.e., pharmaceutical and diagnostic industry, NIH, FDA, academia, etc.) to address and overcome significant roadblocks to the diagnosis and treatments of celiac disease.
  4. Maximize overall awareness of the severity of celiac disease and the serious potential for adverse health consequences in patients over time, building the case for increased commitment to funding and discovering treatments and a cure on the part of pharmaceutical companies, federal agencies, and other stakeholders.
  5. Significantly expand the breadth, depth and diversification of Beyond Celiac funding by strengthening relationships with existing funding partners as well as by creating new, innovative fundraising strategies and mechanisms.
  6. Partner strategically with organizations in both the public and private sectors that have aligned goals and missions to synergize efforts and resources and maximize partnership outcomes.
  7. Build strategic alliances and networks to inform and drive Beyond Celiac science advocacy with the NIH, FDA, payers and other key constituents.
  8. Oversee the activities of direct staff reports and serve as a mentor and leader to the team, ensuring that deadlines are met, work is approached strategically, that all partnerships and resources are fully leveraged, and that the organization receives maximum advantage in advancing the strategic science plan through use of those key resources.
  9. Collaborate strategically and respectfully with the broader Beyond Celiac team, our volunteers, our staff, our Board and with representatives of other firms, serving as an advocate, voice, connector and influencer in driving our strategic science plan forward on time and on budget.



  • Minimum of Bachelor’s Degree, with a preference for courses of study in science, public policy, advocacy, business or related fields
  • Advanced degrees (e.g., MBA, MPH or similar) preferred


  • Professional consulting experience, preferably combined with a mix of either for-profit or nonprofit experience, highly desirable
  • Experience building networks and collaborations, with demonstrated success in establishing, launching, successfully managing and growing scientific partnerships (e.g., pre-competitive consortia, working groups or other forums)
  • Prior experience in healthcare consulting and/or in the healthcare sector (i.e., pharmaceutical, diagnostic, governmental agencies, etc.) highly desirable
  • Basic understanding of science policy and patient advocacy a plus
  • Knowledge of federal and regulatory drug development environment, with NIH and FDA relationships a plus


  • Exceptional relationship builder with strong interpersonal skills: a listener who demonstrates patience, tact and authenticity and who has the ability to ask the right questions
  • Excellent persuasive communication skills (written and oral), with the ability to build consensus and navigate an environment that requires the buy-in of multiple stakeholders
  • Superior strategic planning and project management skills, including organizational abilities and a strong detail orientation coupled with the ability to manage multiple concurrent tasks efficiently
  • Confidence, humility, creativity and the ability to influence, mentor, inspire and work well with others
  • Go-getter/self-starter and thought partner who operates with limited need for supervision
  • Ability to grasp complex topics and synthesize outcomes to form concrete next steps and keep plans on track
  • Excellent ability to manage relationships with individuals at all levels of an organization
  • Ability to monetize ideas to fund scientific progress

More Information


Submit resumes and cover letters to Beyond Celiac at the following address. 

Nancy D. Ginter
Director of Administration
Beyond Celiac
[email protected] 

To obtain additional information about Beyond Celiac, visit our website at BeyondCeliac.org