Archives

Sjögren’s Foundation

Sjörgren’s is a systemic autoimmune disease that affects the entire body. The Sjörgen’s Foundation aims to create a community where patients, health care professionals, and researchers come together to conquer […]

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Barth Syndrome Foundation

Barth Syndrome is a series X-linked genetic disorder, primarily affecting males. It is caused by a mutation in the tafazzin gene resulting in an inborn error in lippid metabolism. The […]

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Hydrocephalus Association

Hydrocephalus is a chronic, neurological condition caused by an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles, resulting in pressure on the brain. It affects […]

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Osteogenesis Imperfecta Foundation

Osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. The mission of the OI Foundation is to improve the […]

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The Marfan Foundation

Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue holds all the body’s cells, organs and tissue together. The Marfan Foundation’s mission is to save […]

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National Hemophilia Foundation

Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. Symptoms include extended bleeding after injury, surgery, trauma, or menstruation. The National Hemophilia […]

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