About NHC Membership

The National Health Council (NHC) is a stakeholder-informed, patient-focused organization that forges consensus among diverse organizations and drives patient-centered health policy.

It is the diversity of our more than 140 members that enables us to create a collaborative environment and put forward consensus public policy solutions that keep the patient central to all we do.

The NHC delivers a wide range of member services, including meetings and conferences, action teams, affinity groups, webinars, and projects to engage with us and network with each other.

Patient advocacy members meet the NHC Standards of Excellence®, demonstrating the highest degree of accountability and transparency.

National Black Nurses Association

Professional and Membership Associations

THE NATIONAL BLACK NURSES ASSOCIATION, INC. was organized in 1971 under the leadership of Dr. Lauranne Sams, former Dean and Professor of Nursing, School of

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National Blood Clot Alliance

Voluntary Health Agencies

The National Blood Clot Alliance’s (NBCA) founding members were patients and medical professionals attending a thrombosis and thrombophilia workshop hosted by The Centers for Disease Control and Prevention in 2003.

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National Diabetes Volunteer Leadership Council

Nonprofit Organizations with an Interest in Health

The National Diabetes Volunteer Leadership Council is committed to improving the safety and quality of life for all children, adults and their families who are

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National Eczema Association

The National Eczema Association was founded in 1988 by individuals with atopic dermatitis/eczema, nurses, physicians and others concerned with the social, medical and economic consequences of

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National Foundation for Ectodermal Dysplasias

Voluntary Health Agencies

The mission of the National Foundation for Ectodermal Dysplasias (NFED)  is to empower and connect people touched by ectodermal dysplasias through education, support, and research. 

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National Hemophilia Foundation

Voluntary Health Agencies

When the National Hemophilia Foundation (NHF) was established in 1948, people with hemophilia were known as “sufferers,” and their life expectancy was less than 30

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National Kidney Foundation

Voluntary Health Agencies

The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands

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National Minority Quality Forum

Professional and Membership Associations

The National Minority Quality Forum (The Forum) is a research and educational organization dedicated to assuring that the American health services research, delivery and financing

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National Multiple Sclerosis Society

The Society mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by MS. To fulfill this

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National Organization for Rare Disorders

Voluntary Health Agencies

If you live with a rare disease, or love someone who does, NORD is here to help you. For more than 30 years, we have

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National Osteoporosis Foundation

Voluntary Health Agencies

The National Osteoporosis Foundation is the nation’s leading resource for patients, health care professionals and organizations seeking up-to-date, medically sound information and program materials on

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National Patient Advocate Foundation

Nonprofit Organizations with an Interest in Health

National Patient Advocate Foundation is a national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and

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National Pharmaceutical Council

Professional and Membership Associations

The National Pharmaceutical Council is a policy research organization dedicated to the advancement of good evidence and science, and to fostering an environment in the

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National Psoriasis Foundation

Voluntary Health Agencies

The National Psoriasis Foundation is the world’s largest patient advocacy organization serving the millions of Americans with psoriasis and psoriatic arthritis. Our priority is to

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Novartis Pharmaceuticals Corporation

Business and Industry

Novartis was created in 1996 through the merger of Ciba-Geigy and Sandoz, two companies with a rich and diverse corporate history. Throughout the years, Novartis

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Osteogenesis Imperfecta Foundation

Voluntary Health Agencies

The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis

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Pancreatic Cancer Action Network (PanCAN)

Voluntary Health Agencies

Founded in 1999, the Pancreatic Cancer Action Network (PanCAN) is dedicated to fighting the world’s toughest cancer. In their urgent mission to save lives, they

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Parent Project Muscular Dystrophy

Voluntary Health Agencies

Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new

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Personalized Medicine Coalition

The Personalized Medicine Coalition (PMC), representing innovators, scientists, patients, providers and payers, promotes the understanding and adoption of personalized medicine concepts, services and products to

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Pfizer Inc.

Business and Industry

Good health is vital to all of us, and finding sustainable solutions to the most pressing health care challenges of our world cannot wait. That’s

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Board Members

Nancy Brown

American Heart Association

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Tracey D. Brown, MBA, BChE

American Diabetes Association

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LaVarne A. Burton

American Kidney Fund

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Tanisha Carino, PhD

Alexion Pharmaceuticals, Inc.

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Patricia Furlong

Parent Project Muscular Dystrophy

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Stevan W. Gibson

Lupus Foundation of America

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Paul Gionfriddo

Mental Health America

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Dory Kranz

National Alopecia Areata Foundation

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Staff

Susan Gaffney

Vice President of Membership, Development, and Operations

Susan Gaffney is the Vice President of Membership, Development, and Operations.

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Aimée Johnson

Administrative Assistant

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Marc M. Boutin, JD

Chief Executive Officer

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Eleanor M. Perfetto, PhD, MS

Executive Vice President of Strategic Initiatives

was named Senior Vice President of Strategic Initiatives for the National Health Council (NHC) in July of 2015 and promoted to Executive Vice President in

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Mary Crowther

Associate, Development

Mary Crowther is the Associate, Development. Prior to joining the National Health Council in October 2019, she worked as the Deputy Finance Director for U.S.

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Jennifer Dexter

Director, Policy

is the Director, Policy. She has been working in the public policy field for more than 20 years. In her role, Dexter helps the National

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Eric Gascho

Vice President, Policy and Government Affairs

is the Vice President, Policy and Government Affairs. He has been with the National Health Council since August 2009. In his role, Gascho helps the

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Brian Harris

Administrative Assistant

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Christina Howerton, MA

Manager, Marketing and New Media

is the Manager, Communications and New Media. In her role at the NHC, she manages digital platforms including the website and social media properties. She

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Officers

Ann Palmer

Chairperson

Arthritis Foundation

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Diana Gray, MA

Vice Chairperson

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Gary M. Reedy

Chairperson-Elect

American Cancer Society

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Matt Eyles

Secretary

America’s Health Insurance Plans

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Steven Taylor, MBA

Immediate Past Chairperson

Sjögren’s Foundation 

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Former Chairs of the Board

Nancy Brown

American Heart Association

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LaVarne A. Burton

American Kidney Fund

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Steven Taylor, MBA

Immediate Past Chairperson

Sjögren’s Foundation 

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Interested in joining the NHC?

Please contact Katherine Scott, NHC’s Senior Manager of Membership and Certifications.