Real-World Evidence Glossary How This Glossary Was Developed The terms selected for inclusion in this glossary were identified based on a targeted literature review and in the expertise of NHC and Duke-Margolis staff and expert advisors. The following process was used: […]
NHC Comments on Key Information and Facilitating Understanding in Informed Consent
NHC Comments on Key Information and Facilitating Understanding in Informed Consent (PDF) April 30, 2024 Division of Dockets Management Food and Drug Administration 5630 Fishers Lane, Room 1061 Rockville, MD […]
Glossary of Patient Engagement Terms
The definitions of these terms, which includes Family Caregiver, Meaningful Engagement, and Patient-Focused Drug Development, stem largely from our patient engagement work, including our ‘Patient-Focused Drug Development – Recommended Language […]
Glossary of Value Assessment Terms
Click here for an infographic on value terminology. Updated July 26, 2024 Below is a list of plain language definitions of terms used in value assessment. Base case analysis: An analysis […]
Start the Conversation: A Year-Round Priority
Start the Conversation: A Year-Round Priority By: The National Hemophilia Foundation March is Bleeding Disorders Awareness Month (BDAM) – as the month is soon coming to a close, it’s an […]
Partnership to Protect Coverage Sign-On Letter
The 23 undersigned organizations represent millions of patients and consumers who live with serious, acute, and chronic conditions across the country. Together, our organizations work to ensure that both patient […]
Meeting Summary
SPES Home Register Schedule Speakers Event Location & Travel Sponsors Event Policies CAE Credits Meeting Summary Photos Attendee Evaluation Results Meeting Summary 2024 SCIENCE OF PATIENT ENGAGEMENT SYMPOSIUM “PATIENT EXPERIENCES […]
NHC Comments on Advance Notice of Methodological Changes for Calendar Year (CY) 2025 for Medicare Advantage (MA) Capitation Rates and Part C and Part D Payment Policies
NHC Comments on Advance Notice of Methodological Changes for Calendar Year (CY) 2025 for Medicare Advantage (MA) Capitation Rates and Part C and Part D Payment Policies (PDF) March 1, […]
Hotel & Travel
AAML Home Register Schedule Speakers Hotel & Travel Event Policies Hotel & Travel The NHC’s Annual Membership Meeting & Luncheon is being held at the St. Regis Washington, DC The […]
Hotel & Travel
SPES Home Register Schedule Speakers Event Location & Travel Sponsors Sponsors Event Policies Hotel & Travel National Health Council OfficeThe National Health Council office is located at 1730 M St […]