Value Work Group

The National Health Council’s Value Work Group meets on a regular basis by teleconference to share and learn from each other’s’ experiences, and to stay up-to-date on topics related to value assessment. The Work Group currently has representatives from 20 patient groups with either prior direct experience with value assessment organizations, such as the Institute for Clinical and Economic Review (ICER), the National Comprehensive Cancer Network (NCCN), Innovation and Value Initiative (IVI), etc., or that expect to interact with one of these organizations soon. The Work Group is only open to NHC patient-group members (voluntary health agency member category) and by invitation. If interested in joining, please contact [email protected].  

Current work group members include: 

  • American Heart Association 
  • American Lung Association 
  • Arthritis Foundation 
  • Asthma and Allergy Foundation of America 
  • Crohn’s and Colitis Foundation 
  • Epilepsy Foundation 
  • EveryLife Foundation 
  • Go2 Foundation (formerly Lung Cancer Alliance) 
  • Immune Deficiency Foundation 
  • Lupus Foundation of America 
  • Mental Health America 
  • National Alliance on Mental Illness 
  • National Eczema Association 
  • National Multiple Sclerosis Society 
  • National Organization for Rare Disorders 
  • National Osteoporosis Foundation 
  • Parent Project Muscular Dystrophy 
  • Prevent Blindness 
  • The FH Foundation