The National Health Council encourages patients and patient advocates to be engaged in research, policy, medical-product development, quality-of-care, and value-of-treatment initiatives. We have developed the NHC Center of Educational Excellence, an e-learning resource, to help patients and patient advocates understand complex topics related to patient centricity in health care. Here you will find our webinar series on value and payment models as well as educational curriculums on quality measures and value assessments.
There is growing interest in clinical outcome assessments, such as patient-reported outcomes, and patient-centeredness across the health care ecosystem. For example, in 2019, the FDA released two new guidance documents on clinical outcome assessment. The NHC seeks to ensure that the NHC membership is prepared to engage in conversations about clinical outcome assessment.
The National Organization for Rare Disorders (NORD) recognized that to improve rare-disease patient engagement, training and support are needed. The NHC partnered with NORD and the University of Maryland to provide training on patient-centered outcomes research (PCOR) for the NORD membership. Learn more here.
NHC Center of Educational Excellence sponsors include: Amgen, Johnson & Johnson