The National Health Council (NHC) is a stakeholder-informed, patient-focused organization that forges consensus among diverse organizations and drives patient-centered health policy.
It is the diversity of our more than 140 members that enables us to create a collaborative environment and put forward consensus public policy solutions that keep the patient central to all we do.
The NHC delivers a wide range of member services, including meetings and conferences, action teams, affinity groups, webinars, and projects to engage with us and network with each other.
Patient advocacy members meet the NHC Standards of Excellence®, demonstrating the highest degree of accountability and transparency.
Voluntary Health Agencies (VHAs) are defined as 501(c)(3) organizations composed of individuals, both lay and professional, voluntarily and democratically organized. Their mission is to combat a particular disease, disability, or group of diseases and disabilities, or to improve and protect the health of a particular group of people. They receive a substantial amount of financial support from voluntary contributions from the public at large. They engage in programs, such as research, education, advocacy, and service to individuals and communities.
Patient advocacy groups must meet the National Health Council minimum Standards of Excellence to be accepted into membership.
Professional associations are health-related organizations consisting primarily of individuals, or of state and local groups of individuals, meeting stated qualifications of training or experience. Other membership associations are health-related associations of individuals or institutions, including alliances and coalitions. Members of this category are expected to demonstrate a broad base of funding either from many individuals or multiple institutions.
Nonprofit Organizations with an Interest in Health are organizations engaged in or concerned with health issues that support the mission of the National Health Council.
Business and Industry members are for-profit companies engaged in the sale of health-related products or services, such as pharmaceutical, biotechnology, and medical device companies. This category includes any subsidiaries or related entities, such as foundations, affiliated with an organization that would otherwise be classified as a Business and Industry member.
Associate Members are organizations that are considered to be primarily vendors. Associate Members have all member privileges, except they are not allowed to be represented on the NHC’s Board of Directors or Nominating Committee and cannot vote at meetings of the entire membership.
Voluntary Health Agencies
The Alpha-1 Foundation is a not-for-profit Florida corporation founded in 1995. The Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people […]
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The ALS Association symbolizes the hopes of people everywhere that Amyotrophic Lateral Sclerosis will one day be a disease of the past – relegated to historical status, studied in medical […]
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The Alzheimer’s Association® is the world’s leading voluntary health organization in Alzheimer’s care, support and research. Our mission is to eliminate Alzheimer’s disease through the advancement of research; to provide […]
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The American Autoimmune Related Diseases Association (AARDA), founded in 1991, is dedicated an organization that founded in order to bring a national focus to autoimmunity and increase collaboration in research, […]
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The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving the lives of cancer patients, and […]
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Vision: Life free of diabetes and all its burdens Mission: To prevent and cure diabetes and to improve the lives of all people affected by diabetes. We lead the fight […]
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The American Foundation for Suicide Prevention (AFSP) is the leading national not-for-profit organization exclusively dedicated to understanding and preventing suicide through research, education and advocacy, and to reaching out to […]
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The American Heart Association (AHA) is a not-for-profit, voluntary health organization funded by private contributions. The Association’s goal is to provide reliable information to the American public on prevention and […]
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The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts. The American Kidney Fund leads […]
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The American Liver Foundation (ALF), founded in 1976, is a national, voluntary nonprofit organization dedicated to the prevention, treatment, and cure of hepatitis and other liver diseases through research, education […]
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The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease, through research, education and advocacy. Their work is focused on […]
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The Amputee Coalition is the nation’s leading nonprofit organization on limb loss, dedicated to enhancing the quality of life for amputees and their families, improving patient care and preventing limb […]
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The Arthritis Foundation is the Champion of Yes for the more than 50 million Americans, including 300,000 children, who are affected by the nation’s #1 cause of disability. Leading the […]
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The Asthma and Allergy Foundation of America (AAFA) is the premier patient organization dedicated to improving the quality of life for people with asthma and allergies and their caregivers, through […]
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The Barth Syndrome Foundation (BSF) is an international non-profit organization that provides information, resources and services for healthcare professionals and families worldwide. BSF’s mission is Saving lives through education, advances […]
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Beyond Celiac was founded as the National Foundation for Celiac Awareness (NFCA) in 2003 as the first patient advocacy group dedicated to improving the environment in order to drive diagnosis […]
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Celiac Disease Foundation (CDF) is the national 501(c)(3) non-profit organization established in 1990 by Elaine Monarch to improve the quality of life for all people affected by celiac disease and […]
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The Children’s Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic and potentially life threatening heart disease. Pediatric cardiomyopathy is the leading cause of heart transplants […]
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The Colorectal Cancer Alliance is a national nonprofit committed to ending colorectal cancer. Working with our nation of passionate allies, we diligently support the needs of patients and families, caregivers, […]
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The COPD Foundation is a 501(c)(3) not-for-profit organization created in 2004, with offices in Washington, D.C. and Miami, FL. The COPD Foundation was established to undertake initiatives that result in […]
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The mission of the Crohn’s & Colitis Foundation is to cure Crohn’s disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.
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The Epilepsy Foundation, a national non-profit with more than 50 local organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally […]
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The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to advancing the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy. […]
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The FH Foundation is a patient-centered nonprofit organization dedicated to research, advocacy, and education of familial hypercholesterolemia (FH). Their mission is to raise awareness and save lives by increasing the […]
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The GBS/CIDP Foundation International is working for a future when no one with Guillain-Barre syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), and related syndromes such as multifocal motor neuropathy (MMN) […]
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Two of the most effective and influential nonprofit organizations serving the lung cancer community, the Bonnie J. Addario Lung Cancer Foundation (ALCF) and the Lung Cancer Alliance (LCA) have proudly […]
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Hemophilia Federation of America, Inc. (HFA) is a patient education, services and advocacy organization serving the rare bleeding disorders community. We are exclusively focused on the bleeding disorders patient and […]
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The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. Founded in 1968 by Marjorie Guthrie, […]
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The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families […]
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The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and […]
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LUNGevity Foundation is changing outcomes for people with lung cancer through research, education, and support.
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The Lupus Foundation of America is a national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases, while giving caring support […]
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Mended Hearts is a national and community-based non-profit organization and is the largest cardiovascular support organization in the world. Mended Hearts is a national and community-based non-profit organization that has […]
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Mental Health America (MHA) – founded in 1909 – is a leading community-based nonprofit dedicated to addressing the needs of those living with mental illness and to promoting the overall […]
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The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis. MGFA serves patients, their […]
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The National Alopecia Areata Foundation (NAAF), founded in 1981, provides support to patients afflicted with alopecia areata, builds public awareness regarding the disease and funds research to find its causes, […]
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The National Blood Clot Alliance’s (NBCA) founding members were patients and medical professionals attending a thrombosis and thrombophilia workshop hosted by The Centers for Disease Control and Prevention in 2003. Sharing a common concern, they resolved […]
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The National Eczema Association was founded in 1988 by individuals with atopic dermatitis/eczema, nurses, physicians and others concerned with the social, medical and economic consequences of the disease. NEA works to […]
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The mission of the National Foundation for Ectodermal Dysplasias (NFED) is to empower and connect people touched by ectodermal dysplasias through education, support, and research. The ectodermal dysplasias are 175+ […]
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When the National Hemophilia Foundation (NHF) was established in 1948, people with hemophilia were known as “sufferers,” and their life expectancy was less than 30 years. People with hemophilia had […]
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The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of […]
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The Society mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by MS. To fulfill this mission, the Society funds cutting-edge […]
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If you live with a rare disease, or love someone who does, NORD is here to help you. For more than 30 years, we have been providing services for patients […]
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The National Osteoporosis Foundation is the nation’s leading resource for patients, health care professionals and organizations seeking up-to-date, medically sound information and program materials on the causes, prevention and treatment […]
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The National Psoriasis Foundation is the world’s largest patient advocacy organization serving the millions of Americans with psoriasis and psoriatic arthritis. Our priority is to provide people with the information […]
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The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The OI Foundation began […]
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Founded in 1999, the Pancreatic Cancer Action Network (PanCAN) is dedicated to fighting the world’s toughest cancer. In their urgent mission to save lives, they attack pancreatic cancer on all […]
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Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year worldwide). Because […]
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Prevent Blindness is the nation’s leading eye health and safety organization dedicated to preventing blindness and preserving sight across all age spectrums and multiple eye conditions. We focus on improving […]
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The Pulmonary Fibrosis Foundation mobilizes people and resources to provide access to high quality care and lead research for a cure so people with pulmonary fibrosis will live longer, healthier […]
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RESOLVE: The National Infertility Association, is a nationwide, nonprofit organization founded in 1974 to serve the needs of those who are striving to build a family. Its mission is to […]
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The Sjögren’s Foundation, founded in 1983, is the nation’s foremost source of information about Sjögren’s syndrome for patients and health care professionals. A nonprofit voluntary health agency, the Foundation promises […]
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The Solve ME/CFS Initiative (SMCI) has been the leading organization focused on myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), since being founded in 1987. SMCI envisions […]
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The Spina Bifida Association of America (SBAA) promotes the prevention of spina bifida and aims to enhance the lives of all affected. The Association was founded in 1973 to address […]
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The LAM Foundation is a nonprofit organization established in 1995. The goals of the Foundation are to raise the level of awareness of LAM in the medical community, to provide […]
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The Marfan Foundation, established in 1981, creates a brighter future for everyone affected by Marfan syndrome and related disorders by pursuing the most innovative research and making sure that it […]
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The Myositis Association, founded in a patient’s basement in 1993, has grown to be the major force in addressing the complex diseases known as the inflammatory myopathies. It is governed […]
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The Trevor Project is the world’s largest suicide prevention and crisis intervention organization for LGBTQ (lesbian, gay, bisexual, transgender, queer, and questioning) young people. The organization works to save young […]
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Founded in 1972, The Tourette Association of America (formerly known as the Tourette Syndrome Association) has emerged as the premier national non-profit organization working to make life better for all people affected by […]
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WomenHeart: The National Coalition for Women with Heart Disease is the first and still only national organization solely devoted to supporting women living with heart disease – the leading cause […]
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The Academy of Managed Care Pharmacy (AMCP) is a professional association dedicated to increasing patient access to affordable medicines, improving health outcomes and ensuring the wise use of health care […]
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AcademyHealth is a leading national organization serving the fields of health services and policy research and the professionals who produce and use this important work. Together with our members, we […]
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AdvaMed’s member companies produce the medical devices, diagnostic products and health information systems that are transforming health care through earlier disease detection, less invasive procedures and more effective treatments. Our members […]
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America’s Health Insurance Plans (AHIP) is the national association whose members provide coverage for health care and related services. Through these offerings, we improve and protect the health and financial […]
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The American Academy of HIV Medicine is a professional organization that supports the HIV practitioner and promotes accessible, quality care for all Americans living with HIV disease. Our membership of […]
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The American Academy of Physical Medicine and Rehabilitation (AAPM&R) is the national medical specialty organization representing more than 9,000 physicians who are specialists in physical medicine and rehabilitation (PM&R). PM&R […]
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Founded in 1900, the American Association of Colleges of Pharmacy (AACP) is the national organization representing pharmacy education in the United States. The mission of AACP is to lead and […]
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The American Association on Health and Disability (AAHD) is a 501 © (3) national non profit association located in Rockville, MD. The mission of AAHD is to advance health promotion […]
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The American College of Rheumatology (ACR) is an ethically-driven, professional membership organization committed to improving the care of patients with rheumatic disease and advancing the rheumatology subspecialty. Founded in 1934, […]
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The American Nurses Association (ANA) is the premier organization representing the interests of the nation’s 4+ million registered nurses. ANA advances the nursing profession by fostering high standards of nursing […]
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The American Society of Anesthesiologists is an educational research and scientific association of physicians organized to raise and maintain the standards of the medical practice of anesthesiology and improve the […]
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Founded in 1902, the AUA is a premier urologic association, providing invaluable support to the urologic community. Our mission is to promote the highest standards of urological clinical care through […]
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The Association for Accessible Medicines, formerly the Generic Pharmaceutical Association, improves access to safe, quality, effective medicine. Better access to medicine is relevant to everybody because, after all, we’re all […]
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The Association for Vascular Access (AVA) is an association of healthcare professionals founded in 1985 to promote the emerging vascular access specialty. Today, AVA stands at the forefront of protecting […]
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Founded in 1974, the Association of Black Cardiologists, Inc., (ABC) is a nonprofit organization with an international membership of 1,500 health professionals, lay members of the community (Community Health Advocates), […]
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The Association of Schools and Colleges of Optometry (ASCO) is the academic leadership organization committed to promoting, advancing and achieving excellence in optometric education. Since 1941, ASCO has achieved this […]
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BIO is the world’s largest trade association representing biotechnology companies, academic institutions, state biotechnology centers and related organizations across the United States and in more than 30 other nations. BIO […]
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The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the than 65 million Americans who care for loved ones […]
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The Diabetes Patient Advocacy Coalition (DPAC) is an alliance of people with diabetes, caregivers, patient advocates, health professionals, disease organizations and companies working collaboratively to promote and support public policy […]
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ISPOR was established in 1995 by a small group of dedicated volunteers and visionaries with the goal of serving as a catalyst to advance the science and practice of health […]
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The Medical Device Manufacturers Association (MDMA) is a national trade association based in Washington, DC providing educational and advocacy assistance to innovative and entrepreneurial medical technology companies. Since 1992, MDMA […]
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Established in 1996, The National Alliance for Caregiving is a non-profit coalition of national organizations focusing on advancing family caregiving through research, innovation and advocacy. Alliance members include grassroots organizations, […]
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Over the past 22 years, the National Alliance of Healthcare Purchaser Coalitions (National Alliance), formerly known as the National Business Coalition on Health (NBCH), has provided expertise, resources and a […]
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THE NATIONAL BLACK NURSES ASSOCIATION, INC. was organized in 1971 under the leadership of Dr. Lauranne Sams, former Dean and Professor of Nursing, School of Nursing, Tuskegee University, Tuskegee, Alabama. […]
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The National Minority Quality Forum (The Forum) is a research and educational organization dedicated to assuring that the American health services research, delivery and financing system is structured to provide […]
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The National Pharmaceutical Council is a policy research organization dedicated to the advancement of good evidence and science, and to fostering an environment in the United States that supports medical […]
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The Personalized Medicine Coalition (PMC), representing innovators, scientists, patients, providers and payers, promotes the understanding and adoption of personalized medicine concepts, services and products to benefit patients and the health […]
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The Pharmaceutical Manufacturers Association (PhRMA) was founded in 1958. Its name was changed to the Pharmaceutical Research and Manufacturers of America in 1994 to underscore the extraordinary commitment of member […]
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PQA’s Mission To improve the quality of medication management and use across healthcare settings with the goal of improving patients’ health through a collaborative process to develop and implement performance […]
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Research!America is the nation’s largest not-for-profit public education and advocacy alliance committed to making research to improve health a higher national priority. Together, with our member organizations that represent a […]
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About USP At USP everything they do is in service of their mission to help protect and improve the health of people around the world. From the standards they create […]
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The Alliance for Aging Research is the leading nonprofit organization dedicated to accelerating the pace of scientific discoveries and their application to vastly improve the universal human experience of aging […]
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The Community Pharmacy Foundation (“CPF”) is a national non-profit organization that provides grants and funding for special projects and studies directly associated with community pharmacy practice and the advancement of […]
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The Diabetes Leadership Council is committed to improving the safety and quality of life for all children, adults and their families who are living with diabetes.
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At FasterCures, we work to clear the path to faster progress by educating stakeholders about the barriers, and by overcoming them through action. We have a number of high-impact programs that are laser-focused […]
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The Food and Drug Law Institute, founded in 1949, is a non-profit organization that provides a marketplace for discussing food and drug law issues through conferences, publications and member interaction. […]
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The consumer affiliate of the American Speech-Language-Hearing Association (ASHA), the mission of the National Association for Hearing and Speech Action (NAHSA) is to increase public understanding of communication disorders. Drawing […]
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National Patient Advocate Foundation is a national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state […]
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As the leading grant making resource for new investigators, OREF provides important financial support that helps them build a strong foundation for their research careers. This critical early support enables […]
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Founded in 1853 in Hartford, CT, Aetna is committed to providing individuals, employers, health care professionals, producers and others with innovative benefits, products and services. Discover more about our organization […]
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“People living with rare and devastating diseases are our Guiding Star. We believe it is our responsibility to listen to, understand, and change the lives of patients and those who […]
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Astellas Pharma US, Inc., is the U.S. affiliate of Astellas Pharma Inc., Japan’s second largest pharmaceutical company and ranked within the top 20 in the global market. Astellas Pharma US […]
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Our mission is to make a meaningful difference to patient health through great medicines that bring benefit for patients and add value for our stakeholders and society. We discover, develop, […]
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Axovant develops transformative treatments for patients with life-altering neurologic conditions. Their mission is to develop innovative gene therapies that have the potential to improve the lives of patients with neurological […]
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For more than 35 years, Biogen Idec has been helping to improve the lives of people living with serious medical conditions. Since our founding in 1978, we’ve produced therapies for […]
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Making a difference starts with taking a stand At bluebird bio, we’re pushing hard on gene therapy because we believe it delivers the chance for people with severe genetic diseases […]
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The Boehringer Ingelheim group is one of the world’s 20 leading pharmaceutical companies. Headquartered in Ingelheim, Germany, it operates globally with 142 affiliates and more than 47,400 employees. Since it […]
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Bristol-Myers Squibb is a global BioPharma company firmly focused on its Mission to discover, develop and deliver innovative medicines that help patients prevail over serious diseases.Around the world, our medicines […]
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Edwards is driven by a passion to help patients. They partner with clinicians to develop innovative technologies in the areas of structural heart disease and critical care monitoring to help […]
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Eli Lilly was founded by Eli Lilly in 1876, and is now the 10th largest pharmaceutical company in the world. We have steadfastly remained independent, but not isolated. Across the […]
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“Gilead is dedicated to developing innovative medicines for life-threatening illnesses. As we pursue this goal, we strive for positive social and environmental change within our company and our supply chain. […]
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We are a science-led global healthcare company with a mission: we want to help people to do more, feel better, live longer. The vaccines, medicines and consumer healthcare products that […]
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Since its early beginnings, given the nature of the products it sells, Grifols maintains a very close relationship with professionals from different hospital areas. Grifols helps medical and healthcare professionals […]
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Horizon Pharma plc is a biopharmaceutical company focused on improving patients’ lives by identifying, developing, acquiring and commercializing differentiated and accessible medicines that address unmet medical needs. They market 11 […]
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Caring for the world, one person at a time… inspires and unites the people of Johnson & Johnson. We embrace research and science – bringing innovative ideas, products and services […]
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Mallinckrodt Pharmaceuticals is a multibillion dollar specialty pharmaceutical company focused on our mission: Managing Complexity. Improving Lives. We provide medicines to address unmet patient needs, stemming from 150 years of […]
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Merck has a long and rich history of working to improve people’s health and well-being. Through the years, our researchers have helped to find new ways to treat and prevent […]
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Neurocrine Biosciences is a neuroscience-focused, biopharmaceutical company with 28 years of experience discovering and developing life-changing treatments for people with serious, challenging and under-addressed neurological, endocrine and psychiatric disorders. The […]
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Novartis was created in 1996 through the merger of Ciba-Geigy and Sandoz, two companies with a rich and diverse corporate history. Throughout the years, Novartis and its predecessor companies have […]
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Good health is vital to all of us, and finding sustainable solutions to the most pressing health care challenges of our world cannot wait. That’s why we at Pfizer are […]
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Regeneron (NASDAQ: REGN) is a leading biotechnology company that invents life-transforming medicines for people with serious diseases. Founded and led for 30 years by physician-scientists, their unique ability to repeatedly […]
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SANGAMO is committed to translating ground-breaking science into genomic therapies that transform patients’ lives.
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At Servier, they believe that providing future generations with a healthier world is the very essence of their mission. As a leading pharmaceutical company, they work towards our purpose with […]
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Takeda is a research-based global pharmaceutical company. It is the largest pharmaceutical company in Japan and one of the global leaders of the industry. Setting our management philosophy, “Takeda-ism” as […]
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MyHealthTeams creates social networks for communities of people facing chronic conditions (everything from Lupus and multiple sclerosis, to autism, breast cancer, and COPD). We believe that when people facing the […]
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