The National Health Council (NHC) is a stakeholder-informed, patient-focused organization that forges consensus among diverse organizations and drives patient-centered health policy.
It is the diversity of our more than 150 members that enables us to create a collaborative environment and put forward consensus public policy solutions that keep the patient central to all we do.
The NHC delivers a wide range of member services, including meetings and conferences, action teams, affinity groups, webinars, and projects to engage with us and network with each other.
Patient advocacy members meet the NHC Standards of Excellence®, demonstrating the highest degree of accountability and transparency.
Voluntary Health Agencies (VHAs) are defined as 501(c)(3) organizations composed of individuals, both lay and professional, voluntarily and democratically organized. Their mission is to combat a particular disease, disability, or group of diseases and disabilities, or to improve and protect the health of a particular group of people. They receive a substantial amount of financial support from voluntary contributions from the public at large. They engage in programs, such as research, education, advocacy, and service to individuals and communities.
Patient advocacy groups must meet the National Health Council minimum Standards of Excellence to be accepted into membership.
Professional associations are health-related organizations consisting primarily of individuals, or of state and local groups of individuals, meeting stated qualifications of training or experience. Other membership associations are health-related associations of individuals or institutions, including alliances and coalitions. Members of this category are expected to demonstrate a broad base of funding either from many individuals or multiple institutions.
Nonprofit Organizations with an Interest in Health are organizations engaged in or concerned with health issues that support the mission of the National Health Council.
Business and Industry members are for-profit companies engaged in the sale of health-related products or services, such as pharmaceutical, biotechnology, and medical device companies. This category includes any subsidiaries or related entities, such as foundations, affiliated with an organization that would otherwise be classified as a Business and Industry member.
Associate Members are organizations that are considered to be primarily vendors. Associate Members have all member privileges, except they are not allowed to be represented on the NHC’s Board of Directors or Nominating Committee and cannot vote at meetings of the entire membership.
Voluntary Health Agencies
Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition, that is passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or […]
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ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The ALS Association works to discover treatments and a […]
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Alzheimer’s is the most common form of dementia, a general term for memory loss and other cognitive abilities serious enough to interfere with daily life. The Alzheimer’s Association focuses on accelerating […]
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Cancer occurs in the body when abnormal or old cells continue to live, while the body also creates new cells. This process can then crowd out normal cells, and create […]
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Diabetes comes in two forms. In type 1 diabetes the body does not produce insulin. In typle 2 diabetes, the body does not use insulin properly. The American Diabetes Association […]
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The American Foundation for Suicide Prevention (AFSP) engages in mental health initiatives to raise awareness for and support mental health. The AFSP is dedicated to saving lives and bringing hope […]
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Heart and blood vessel disease (also called heart disease) includes numerous problems, many of which are related to a process called atherosclerosis. The AHA us the nation’s oldest and largest […]
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Kidney disease occurs when the Kidneys are permanently damaged and can no longer clean the waste from the bloodstream. The American Kidney Fund (AKF) fights kidney disease on all fronts […]
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Liver disease involves any condition that damages the liver and prevents it from functioning well. There is an ever-increasing number of people with liver diseases such as hepatitis C, non-alcoholic […]
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Lungs are a part of the respiratory system, a group of organs and tissues that work together to help you breathe. Lung disease includes diseases that affect the passage of […]
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An amputation is the loss of a limb, or birth condition in which a person is born with a limb difference. Almost 2 million Americans have experienced amputation or were […]
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Arthritis is an informal way of referring to joint pain or joint disease. There are more than 100 types of Arthritis related conditions. Common arthritis joint symptoms include swelling, pain, […]
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Asthma is a chronic disease that causes airways to become inflamed which can make it difficult to breathe. Allergies are also the most common chronic disease in which the immune […]
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An autoimmune disease develops when a person’s immune system mistakenly identifies healthy cells as foreign cells and attacks them. There are over 100 known autoimmune diseases. Most of these are […]
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Barth Syndrome is a series X-linked genetic disorder, primarily affecting males. It is caused by a mutation in the tafazzin gene resulting in an inborn error in lippid metabolism. The […]
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Celiac disease is a serious and genetic autoimmune disease that is triggered by consuming protein called gluten, that is found in wheat, barley, and rye. Beyond Celiac unites with patients […]
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Osteoporosis is a bone disease that occurs when the body loses too much bone, makes too little bone, or both. As a result, bones become weak and may break from […]
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The Brain Injury Association of America’s mission is to advance awareness, research, treatment, and education and to improve the quality of life for all people affected by brain injury.
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Celiac disease is a serious autoimmune disease that occurs in genetically predisposed people where the ingestion of gluten leads to damage in the small intestine. Two and one-half million Americans […]
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Colorectal cancer refers to cancer in the colon and/or rectum, or both. Colorectal cancer is the third most common cancer in the US, and the second leading cause of cancer […]
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Chronic Obstructive Pulmonary Disease (COPD) is a term used to describe chronic lung diseases including emphysema, and chronic bronchitis. This disease is also characterized by breathlessness. The COPD Foundation was […]
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Crohn’s disease is an inflammatory bowel disease that causes chronic inflammation of the gastrointestinal tract. Ulcerative colitis is a chronic disease of the large intestine, in which the lining of […]
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Epilepsy is a neurological condition that effects the nervous system and causes seizures. It is usually diagnosed after a person has had at least two seizures (or after one seizure […]
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A rare disease in the United States affects fewer than 200,000 people, however more that 30 million Americans live with one or more rare diseases. Fifty percent of these rare […]
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The mission of the Family Heart Foundation is to save generations of families from heart disease and stroke through timely identification and improved care of Familial Hypercholesterolemia (FH) and elevated […]
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Guillain-Barre’ syndrome (GBS) is an chronic inflammatory disorder of the peripheral nerves outside of the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare disorder of the […]
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GLI’s mission is to improve the lives of individuals and families impacted by liver disease through promoting innovation, encouraging collaboration, and scaling optimal approaches to help eradicate liver diseases.
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Lung cancer often has no symptoms until it has spread (metastasized). This is because there are few specialized nerves (pain receptors) in the lungs. When symptoms do occur, they vary […]
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Hemophilia is a condition in which the ability of the blood to clot is reduced, causing the sufferer to bleed severely from even a slight injury. Hemophilia Federation of America, […]
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Huntington’s disease (HD) is a brain disease that is passed down in families from generation to generation. It is caused by a mistake in the DNA instructions that build our […]
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Hydrocephalus is a chronic, neurological condition caused by an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles, resulting in pressure on the brain. It affects […]
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Primary immunodeficiencies (PI) are a group of more than 400 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. while the diseases may […]
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Fibrodysplasia ossificans progressiva (FOP) is one of the most rare genetic conditions known to medicine. FOP causes bone to form in muscles, tendons, ligaments and other connective tissues. IFOPA provides […]
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Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression […]
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The Leukemia & Lymphoma Society is at the forefront of the fight to cure cancer. We are the largest nonprofit dedicated to creating a world without blood cancers. Since 1949, […]
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Lupus is a chronic disease that can cause inflammation and pain in any part of the body. Lupus is an autoimmune disease, which means that your immune system — the […]
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Mended Hearts offers hope to heart disease patients, their families, and caregivers. Mended Hearts mission is to inspire hope and improve the quality of life of heart patients and their […]
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Mental Health conditions are disorders that can affect mood, thinking, and behavior. Nearly 1 in 5 American adults will have a diagnosable mental health condition in any given year.
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Myasthenia Gravis is a rare Nueromuscular disorder. The most common form of Myasthenia Gravis is a chronic autoimmune neuromuscular disorder characterized by fluctuating weakness of the voluntary muscle groups. The […]
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Alopecia areata is a common autoimmune skin disease, causing hair loss on the scalp, face and sometimes on other areas of the body. It affects as many as 6.8 million […]
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Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. Symptoms include extended bleeding after injury, surgery, trauma, or menstruation. The National Bleeding […]
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Blood clots can affect people of all ages, race and gender. One of the most important things you can do to prevent blood clots is to know if you are […]
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Eczema encompasses a group of conditions that cause the skin to become itchy, inflamed, or have a rash-like appearance. Eczema is a common condition affecting over 31 million Americans. The […]
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Ectodermal Dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features, the individual […]
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The National Foundation for Infectious Diseases mission is to educate and engage the public, communities, and healthcare professionals about infectious diseases across the lifespan
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Chronic kidney disease (CKD) is a condition characterized by a gradual loss of kidney function over time. National Kidney Foundation is a lifeline for all people affected by kidney disease. […]
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Multiple Sclerosis involves an immune-mediated process in which an abnormal response of the body’s immune system is directed against the central nervous system. The National Multiple Sclerosis Society’s mission is […]
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National Organization for Rare Diseases is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
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Psoriasis is an immune-mediated disease that causes inflammation in the body that may causes visible signs of inflammation such as raised plaques and scales on the skin. The National Psoriasis […]
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Osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. The mission of the OI Foundation is to improve the […]
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Duchenne Muscular Dystrophy is a genetic disorder characterized by the progressive loss of muscle. It is a multi-systemic condition, affecting many parts of the body, which results in deterioration of […]
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Parkinson’s disease (PD) is a neurodegenerative disorder that affects predominately dopamine-producing (“dopaminergic”) neurons in a specific area of the brain called substantia nigra. Symptoms generally develop slowly over years. The progression […]
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Prevent Blindness mission is to prevent blindness and preserve sight. Prevent Blindness focuses on a wide array of eye conditions and diseases that may contribute to blindness.
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Pulmonary Fibrosis is scarring in the lungs that may lead to low oxygen levels. Pulmonary fibrosis is a family of more than 200 different lung diseases. The Pulmonary Fibrosis Foundation […]
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Infertility is characterized by the failure to establish a clinical pregnancy after 12 months of regular, unprotected sexual intercourse or due to an impairment of a person’s capacity to reproduce […]
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Sjörgren’s is a systemic autoimmune disease that affects the entire body. The Sjörgen’s Foundation aims to create a community where patients, health care professionals, and researchers come together to conquer […]
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Spina Bifida is the most common permanently disabling birth defect that is associated with life. Approximately 166,000 individuals in the United States have Spina Bifida.
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Susan G. Komen’s mission is saving lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.
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Lymphangioleiomyomatosis (LAM) is a rare and progressive lung disease that primarily affects women and has no known cure. The LAM Foundation serves the scientific, medical, and patient communities by offering […]
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Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue holds all the body’s cells, organs and tissue together. The Marfan Foundation’s mission is to save […]
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The MSA Coalition’s vision is to improve quality of life for the multiple system atrophy community by expanding access to care and support while advancing research toward treatment and a […]
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Myositis refers to a general inflammation or swelling of the muscle. The mission of The Myositis Association is to improve the lives of persons affected by myositis, fund innovative research, […]
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The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid […]
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The Trevor Project is a suicide prevention and crisis intervention organization for LGBTQ (lesbian, gay, bisexual, transgender, queer, and questioning) young people. The organization works to save young lives by […]
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Tourette Syndrome is a type of Tic disorder characterized by 2 motor tics and 1 vocal tics that have occurred for more than 1 year. Tourette Association of America (formerly […]
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The VHL Alliance is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by von Hippel-Lindau disease. VHL disease is a […]
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WomenHeart’s mission is to improve the health and quality of life of women living with or at risk of heart disease, and to advocate for their benefit.
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The mission of the Abdominal Core Health Quality Collaborative (ACHQC) is to maximize the quality and value of health care for patients who suffer from hernia disease and diseases of […]
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The Academy of Managed Care Pharmacy (AMCP) is a professional association dedicated to increasing patient access to affordable medicines, improving health outcomes and ensuring the wise use of health care […]
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AcademyHealth is a professional organization of health service researchers, policymakers, health care practitioners, and stakeholders. The AcademyHealth mission is to advance the field of health service research and health policy […]
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Advanced Medical Technology Association is a trade association that prioritizes efforts to advance medical technology globally. The Advanced Medical Technology mission is to advocate for the highest ethical standards and […]
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The Alliance for Pharmacy Compounding is the voice for pharmacy compounding, representing compounding pharmacists and technicians in both 503A and 503B settings, as well as prescribers, educators, patients, and suppliers.
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AHIP is a national association whose members provide health care coverage, services, and solutions to hundreds of millions of Americans. The mission of AHIP is to make health care better […]
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The American Academy of Physical Medicine and Rehabilitation is a national medical specialty organization of physicians who specialize in physical medicine and rehabilitation. The Academy mission is to lead the […]
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The American Association on Health and Disability is a national nonprofit organization of disability researchers, health care professionals, public health professionals, policy analysts, disability organizations, health departments, people with disabilities, […]
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The American College of Rheumatology is a not-for-profit, professional association of physicians, health professionals, and scientists. The American College of Rheumatology is committed to advancing the specialty of rheumatology worldwide […]
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We’re here to improve patient care through supporting both individuals and organizations to advance the nursing profession. From advocating in the halls of Congress, to setting the bar for credentialing […]
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The American Society of Anesthesiologists is a professional membership organization dedicated to raising and maintaining the standard of the medical practice of anesthesiology and to improve patient care. The ASA […]
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The Association for Accessible Medicines is a professional membership association focused on improving access to safe, quality, and effective medicines.
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The Association for Vascular Access is an association of health care professionals that promote the emerging vascular access specialty. The mission of AVA is to lead health care by protecting […]
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The Association of Black Cardiologists is a nonprofit organization of health professionals, community health advocates, corporate members, and institutional members. The ABC is dedicated to eliminating the disparities related to […]
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The Association of Schools and Colleges of Optometry is an academic leadership organization committed to advancing optometric education and research. The ASCO represents all accredited schools and colleges of optometry […]
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BIO is an advocacy association representing members companies, state biotechnology groups, academic and research institutions, and related organizations in the United States. BIO works toward enriching the biotechnology industry through […]
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Caregiver Action Network is a family caregiver organization working to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, diseases, and old age. […]
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The Council of Medical Specialty Societies (CMSS) is a coalition of 50 specialty societies representing more than 800,000 physicians across the house of medicine. CMSS works to catalyze improvement through […]
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The Diabetes Patient Advocacy Coalition is an alliance of people with diabetes, caregivers, patient advocates, health professionals, disease organizations, and companies. The DPAC focuses on working collaboratives to promote and […]
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Haystack Project is a non-profit enabling rare and ultra-rare disease patient advocacy organizations to highlight and address systemic obstacles to patient access. Their core mission is to evolve health care […]
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ISPOR is a nonprofit organization of health care stakeholders including researchers, academicians, regulators and assessors, public and private payers, health care providers, industry, and patient representatives. The ISPOR mission is […]
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The Medical Device and Manufacturing Association is a trade association that provides educational and advocacy assistance to innovative and entrepreneurial medical technology companies. The MDMA’s mission is to promote public […]
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The National Alliance for Caregiving is a professional membership organization dedicated to improving quality of life for friend and family caregivers and those in their care. The National Alliance for […]
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The National Alliance of Healthcare Purchaser Coalitions is a nonprofit purchaser-led organization dedicated to driving health and health care value across the country. The NAHPC aims to consistently act in […]
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The National Black Nurses Association is a nonprofit organization representing African American Nurses from the U.S., Canada, Eastern Caribbean and Africa. The NBNA mission is to provide a forum for […]
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The National Minority Quality Forum is a research and educational organization dedicated to ensuring that high-risk racial and ethnic populations and communities receive optimal health care. The NMQF mission is […]
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The National Pharmaceutical Council is a health policy research organization dedicated to the advancement of good evidence and science, and to fostering an environment in the United States that supports […]
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The Personalized Medicine Coalition is a professional membership organization that represents innovators, scientists, patients, providers, and payers. The PMC focuses on the understanding and adoption of personalized medicine concepts, services, […]
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The Pharmaceutical Research and Manufacturers of America is a professional membership organization representing innovative biopharmaceutical research companies. PhRMA advocates for explaining the increase complexity and risk of the research and […]
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The Pharmacy Quality Alliance is a national quality organization dedicated to improving medication safety, adherence, and appropriate use. PQA represents members including pharmacies, health plans, health care providers, pharmacy benefit […]
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Research!America is a professional membership organization that represents an array of medical, health, and scientific fields. Research!America aims to achieve funding for medical and health research; better inform the public […]
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APIC is the leading professional association for infection preventionists (IPs) with more than 15,000 members. Our mission is to advance the science and practice of infection prevention and control.
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IVI’s mission is to advance the science, practice, and use of patient-centered health technology assessment to support decisions that make healthcare more meaningful and equitable.
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United States Pharmacopeia is an independent, scientific nonprofit organization focused on building trust In the supply of safe, quality medicines. The USP is committed to the quality of medicines and […]
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Aging is a natural process that occurs over time. The Alliance for Aging Research is dedicated to accelerating the pace of scientific discoveries and their application to vastly improve the […]
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The Arthritis National Research Foundation funds arthritis research to understand the causes, prevention and development of new treatments for osteoarthritis, rheumatoid arthritis, lupus, juvenile arthritis and other autoimmune diseases.
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The Community Pharmacy Foundation’s mission is to assist pharmacy practitioners by providing resources for research and development to encourage new capabilities and continuous improvements in the delivery of patient care.
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The Cystinosis Research Network is a nonprofit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis. The CRN vision is […]
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The Diabetes Leadership Council is a membership-oriented organization that dedicates passion and advocacy to advance patient first diabetes policies on the local, state, and national level.
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EndCAN: The National Foundation to End Child Abuse and Neglect: The National Foundation to End Child Abuse and Neglect (EndCAN) raises awareness of the health, mental health and public health […]
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FasterCures works to create patient-centered system that accelerates science research, dismantles barriers to access, and connects patients with treatments. FasterCures focuses on initiatives including patient engagement, biomedical innovation, and research […]
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The Food and Drug Law Institute is a membership organization that offers education, training, publications, and professional engagement opportunities in the field of food and drug law. The FDLI engages […]
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The Grange strengthens individuals, families and communities through grassroots action, service, education, advocacy and agriculture awareness.
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HealthyWomen is dedicated to educating women in the middle — ages 35 to 64 — to make informed health decisions, to advocate for themselves and to prioritize their health and […]
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The National Association for Hearing and Speech action is a consumer affiliate of the American Speech-Language-Hearing Association. The NAHSA works with a national network of audiologists and speech language pathologists […]
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The National Patient Advocate Foundation is an advocacy affiliate to the Patient Advocate Foundation. The NPAF works at the local, regional, and national level to promote access to affordable, quality […]
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The Orthopaedic and Research Education Foundation (OREF) mission is to improve lives by supporting excellence in orthopaedic research. The OREF is dedicated to being a leader in supporting research that […]
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The Society for Women’s Health Research (SWHR) is the thought leader in promoting research on biological sex differences in disease and improving women’s health through science, policy, and education. We […]
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UnidosUS is the nation’s largest Hispanic civil rights and advocacy organization. Through their unique combination of expert research, advocacy programs, and an Affiliate Network of nearly 300 community-based organizations across […]
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Coherus is focused on expanding patient access to important, cost-effective medicines and delivering significant savings to the U.S. healthcare system. Every member of the Coherus team is dedicated, motivated, and […]
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