The patient’s view of health care value

The U.S. health care system is undergoing a transformation in how it delivers and pays for care. As traditional fee-for-service gives way to value-based arrangements, understanding the “value” of health care has become a national priority. The National Health Council is focused on ensuring the voice of the patient and patient organizations are an integral part of the value discussion.

Call for Comments

In 2016, the National Health Council released two tools to help the patient community prepare for value assessment: the Patient-Centered Value Model Rubric and Get-Ready Checklist for Patient Organizations. Since 2016, the landscape and patient experience with value assessment has advanced significantly. To ensure that these tools continue to evolve and are useful, we are asking for your help in updating them. Comments are due by Feb. 3, 2020.

The NHC, with stakeholder input, has created a Value Model Rubric to help evaluate the patient centeredness of value models and to guide value model developers on the meaningful incorporation of patient engagement throughout their processes. Read it here.

A step-by-step guide for patient advocacy organizations to engage in the development, implementation, and assessment of value. Read it here.

A collaboration between the University of Maryland School of Pharmacy, the NHC, patient community leaders, and payer and industry stakeholders. The Center strives to promote the inclusion of diverse patient voices in research to help uncover the elements of value in health care that are most important to patients. 
Learn more here.

  • “Back to School with the National Health Council: Patient Community Training on Value Assessment,” in Washington, DC, on September 6, 2019 – Learn more here
  • “Value Assessment Frameworks” at the BIO Patient and Health Advocacy Summit on October 31, 2019 – Learn more here

The Work Group currently has representatives from 21 patient groups with either prior direct experience with value assessment organizations. The Work Group is open to NHC patient-group members and non-member patient organizations by invitation.

On July 31, 2018, the National Health Council (NHC) convened representatives from US organizations that have produced value frameworks/assessments over the last several years with participants from patient groups that have interacted with those organizations. The objectives of the meeting were to:

  • Articulate a shared vision for what marks success in enhanced patient centricity in value assessment (VA) and
  • Outline tangible, feasible actions that can be taken to achieve that success. The actions may be on the part of patient groups, value-assessment organizations (VA bodies), or both in collaboration.

Read about the findings here.

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