Wide Rande of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

ClinicalTrials.gov Modernization Efforts for 2020

By Theo Smith, Communications Intern ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. This database is a resource

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Patient-Focused Medical Product Development Webinar Series: A Look at Rare Disease Listening Sessions with NORD and the FDA

Patient-Focused Medical Product Development Webinar Series: A Look at Rare Disease Listening Sessions with NORD and the FDA Event Date: 2020-01-31 Event Time: 1:00 pm

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Health Care Reform Action Team

For more information, contact Maddie Mason, Senior Associate, Policy.

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2018 Washington Representatives Retreat

Located at the Hotel Annapolis (formerly the Loews Annapolis Hotel) in Annapolis, MD, this one-and-a-half-day conference brought together government relations professionals to discuss the current landscape

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Patient-Focused Medical Product Development Webinar Series

Patient-Focused Medical Product Development Webinar Series There is growing interest in clinical outcome assessments, such as patient-reported outcomes, and patient-centeredness across the health care ecosystem.

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Passage of Major Funding and Health Policy Legislation Closes Out 2019

by Maddie Mason, Senior Associate, Policy Legislation providing funding for all federal programs for fiscal year 2020 was passed by Congress and signed into law

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NHC Seeks Public Comment on Two Fair-Market-Value Compensation for Patient Engagement Tools

By Silke Schoch, Manager, Research & Programs As part of the National Health Council (NHC) Fair-Market Value (FMV) project aimed at supporting sustainable agreements between

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Domains and Values

Domains & Values The NHC regularly releases sets of domains and values on important health care topics, which outline our policy priorities for each issue.

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Join Us in Raising Awareness for These Causes in January

Join Us in Raising Awareness for These Causes in January By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and

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