2019 Science of Patient Engagement Symposium

Using Data Science, Technology, and Patient Engagement to Personalize Health Care

  • Event Date: Oct. 28, 2019
  • Event Location: 
  • Sponsorship: Alkermes, Boehringer Ingelheim, Merck & Co., Pfizer, Sanofi

The annual National Health Council (NHC) Science of Patient Engagement Symposium for medical, scientific, and research leaders is a two-day meeting held in the fall each year in Washington, DC. This meeting focuses on the science of patient engagement and was formerly called the Chief Medical/Science Officers Conference. Research leaders share – with a broad scientific audience – their experiences, accomplishments, best practices, and resulting impacts on medicine and science regarding patient centricity.

Welcome Keynote: Technology-Enabled Health Care: Can We Achieve Personalized Approaches to Health?
Moderator: Eduardo Sanchez, MD, MPH, Chief Medical Officer for Prevention, American Heart Association, & Conference Co-Chair

  • Robert M. Califf, MD, MACC, Vice Chancellor for Health Data Science, Donald F. Fortin, MD Professor of Cardiology, Director, Duke Forge, Duke University, Advisor, Verily Life Science Slides 123

Partners’ Perspectives on the Value of a Patient-Researcher Partnership
Moderator: Eleanor Perfetto, PhD, MS, Executive Vice President, Strategic Initiatives, National Health Council

  • Julia Slejko, PhD, Assistant Professor, Pharmaceutical Health Services Research, University of Maryland School of Pharmacy Slides
  • Jamie Sullivan, MPH, Vice President, Public Affairs, COPD Foundation

Fireside Chat: A Vision for Personalizing Health

  • Marc Boutin, JD, Chief Executive Officer, National Health Council
  • Heidi Dohse, Senior Program Manager, Healthcare & Life Sciences, Google Cloud
Patient Engagement: What is Needed for Personalized Care Management?
Moderator: Eric Racine, PharmD, MBA, Vice President & Head, Public Affairs & Patient Advocacy, US External Affairs, Sanofi
  • Maya Hanna, MPH, PhD Candidate, University of Maryland School of Pharmacy Slides
  • Tom Workman, PhD, Principal Researcher, American Institutes for Research Slides

Personalized Care Management to Achieve Outcomes Important to Patients
Moderator: Jason Harris, Director, Public Policy, Lupus Foundation of America

  • Guy Eakin, PhD, Senior Vice President, Scientific Strategy, Arthritis Foundation
  • Valerie Barton, MA, Chief Data Strategy Officer, People-Centered Research Foundation (PCRF) Slides

Luncheon Keynote: Emerging Data Technologies: Changing Medicines and Health Services
Moderator: Lisa Simpson, MB, BCh, FAAP, President and CEO, AcademyHealth

  • Javier Jimenez, MD, MPH, Vice President, Global Head, Real World Evidence and Clinical Outcomes, Sanofi

Real-World Evidence as a part of Personalized Care Management
Moderator: Matthew Pickering, PharmD, RPh, Director, Research & Quality Strategies, Pharmacy Quality Alliance

  • Jacqueline Corrigan-Curay, JD, MD, Director, Office of Medical Policy, Center for Drug Evaluation and Research, U.S. Food and Drug Administration Slides
  • Danielle Lavallee, PharmD, PhD, Research Associate Professor, University of Washington Department of Surgery

Data Security & Ethical Use
Moderator: Matt Makara, MPH, Director, Research & Scientific Affairs, Sjögren’s Syndrome Foundation

  • Peter Blenkinsop, Esq., Partner, Drinker Biddle & Reath LLP
  • Anne Marie Stanley, PhD, Senior Manager, Science, Regulation & Policy, Drinker Biddle & Reath LLPIlse Peterson, MPH, Senior Manager, Strategy & Alliance Development, Drinker Biddle & Reath LLP

Artificial Intelligence & Predictive Analytics
Moderator: Elisabeth Oehrlein, PhD, MS, Senior Director, Research and Programs, National Health Council

  • Michael Kattan, PhD, Chair of the Department of Quantitative Health Sciences, Cleveland Clinic Slides
  • Kelly Myers, Chief Technology Officer, Familial Hypercholesterolemia Foundation Slides
  • Aalpen Patel, MD, FSIR, Chair, Department of Radiology, Vice Chair, Informatics & Quality, Department of Radiology, Medical Director, 3D Imaging and Printing Laboratory, Geisinger Health System Slides

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