The National Health Council (NHC) recently launched its Patient Experience Dossier: Metastatic Non-Small Cell Lung Cancer, a first-of-its-kind patient experience resource designed to ensure the lived experiences, priorities, and unmet needs of people living with metastatic non-small cell lung cancer, as well as their caregivers, are meaningfully reflected in the decisions that affect them.

The dossier is intended to serve a wide range of stakeholders, including patients, patient organizations, providers, payers, industry, health administrators, and researchers. For business and industry leaders, it highlights gaps in care and opportunities for innovation in screening, diagnosis, treatment, and support services, while also identifying areas where financial burden and access challenges may affect patient outcomes.

The NHC would like to recognize the members of the Advisory Steering Committee for their contributions, including critical review, domain expertise, and iterative feedback, all of which substantially informed the dossier framework and design.

• • Shanada Monestime, PharmD, BCOP – Director, Community Engaged Research, GO2LungFoundation
  • Terri Conneran – Patient, Founder & Director, KRAS Kickers
  • Dusty Donaldson – Patient Advocate, Founder, Lung Cancer Action Network & LiveLung
  • Annette Eyer – National Assistant Vice President Media Advocacy and Patient Engagement,American Lung Association
  • Albert Rizzo, MD, FACP – Chief Medical Officer, American Lung Association
  • Hossein Borghaei, DO, MS – Chief of Thoracic Medical Oncology, Professor, Department of Hematology/Oncology at Fox Chase Cancer Center