Patient Engagement

A Guide to Incorporating the Patient Voice into the Health Ecosystem

Read the Rubric here.

The NHC wants to ensure that all stakeholders confidently enter into ongoing, compliant, and sustainable engagement efforts that effectively drive health care innovation based on patient and caregiver insights, which must be collected in a trusted and high-quality manner. This project aims to support sustainable agreements between stakeholders and the patient and caregiver community as part of medical product development. View the toolbox.

The National Health Council (NHC) is focused on ensuring the patient’s journey is collected in standardized ways to inform patient-centric efforts in research, product development, and care delivery. We want to leverage the tools available and communicate shared learnings. To that end, we have developed a Patient Experience Mapping Toolbox.

The NHC aspires to ensure patient centricity in our health care ecosystem through the implementation of Patient-Centered Core Impact Sets (PC-CIS). Learn more here.

This glossary will help patients, patient advocates, and other health care stakeholders understand what common terms mean and ensure that everyone collaborating to make health care more patient-centric is speaking the same language.

Patient-focused medical product development is a mechanism by which stakeholders, including but not limited to medical product developers, academics, and regulators, form a partnership with patients to enhance medical product development, throughout the research, regulatory, and reimbursement processes. 

Read the case examples here.

As stakeholders across the health care ecosystem embrace patient centeredness and integrate the patient voice into their processes, decisions, and organizations, meaningful patient engagement has become increasingly important during drug development, regulatory product review, and value assessment. In practical terms, this means that patients, including caregivers, advocates, and advocacy organizations, are active, respected, and full partners in the endeavor, and their views are incorporated into all processes. Read more here.

The NHC partnered with the Pharmacy Quality Alliance (PQA) and the National Quality Forum (NQF) to create the Patient Engagement in Quality Measurement Rubric. This guide was created to help include meaningful patient engagement to the quality measure lifecycle.