2023 International Patient Forum (PDF)
2023 International Patient Forum
How the U.S. Patient Community Can Be Informed, Involved, and Influential in International Dialogues and Discussions
Wednesday, May 31, 2023
1:00 – 3:00 p.m. ET
Virtual Event

Agenda

Wednesday, May 31
1:00 – 1:10 p.m.              Welcome & Introductions

                                         Remarks by:
                                      • Randall Rutta, Chief Executive Officer, National Health Council

1:10 – 1:25 p.m.              Kick-off Conversation
                                         Research and innovation spans the world. Patients and patient advocates do well to be informed and prepared on issues
                                         beyond national boundaries. This conversation will frame the importance of patient advocacy in a global context.

                                         Moderator:
                                       • Randall Rutta, Chief Executive Officer, National Health Council

                                         Speaker:
                                       • Donna Cryer, President & CEO, Global Liver Institute

1:25 – 2:10 p.m.             NHC Member Panel.         
                                         What does it mean to be engaged in patient advocacy globally? How do US-based groups balance domestic and global
                                         interests? Hear from NHC member leaders about their challenges and what opportunities they see in this environment.

                                        Panelists:
                                      • Cyndi Zagieboylo, President & CEO, National Multiple Sclerosis Society
                                      • Julia Jenkins, Executive Director, EveryLife Foundation for Rare Diseases
                                      • Pat Furlong, Founding President & CEO, Parent Project Muscular Dystrophy
                                      • Celina Gorre, Chief Executive Officer, WomenHeart

2:10 – 2:15 p.m.              Break

2:15 – 2:50 p.m.              Open Facilitated Discussion

                                          Participants will be invited to share their experience and perspectives in engaging in global advocacy work.
                                          This interactive session will focus on discussion questions.

                                       Facilitated by:
                                       • Lisa Butler, President & CEO, GBS-CIDP and Board Member, National Health Council

2:50 – 3:00 p.m.               Conclusions, Next Steps & Closing Remarks

                                           Remarks by:
                                        • Randall Rutta, Chief Executive Officer, National Health Council
                                        • Lisa Butler, President & CEO, GBS-CIDP and Board Member, National Health Council

3:00 p.m.                          Event Adjourn