The EveryLife Foundation for Rare Diseases is seeking a Chief of Marketing and Communications Officer (CMCO) to join its team.
The EveryLife Foundation for Rare Diseases (EveryLife Foundation) is a science-based nonprofit, nonpartisan advocacy organization dedicated to bringing treatments to over 30 million Americans with rare diseases. The Foundation works with patient advocates, lawmakers, industry, academic scientists, Food and Drug Administration (FDA), and National Institutes of Health (NIH) to advance the equitable development of and access to lifesaving diagnoses, treatments, and cures.
The CMCO serves as principal advisor charged with executing comprehensive marketing and communications strategies to promote and amplify the EveryLife Foundation for Rare Diseases’ brand across platforms. The CMCO will lead all communications externally, oversee Foundation’s marketing operations, and ensure timely and consistent internal communication to create awareness of plans and initiatives across the organization. The CMCO will work collaboratively with leadership and other key stakeholders in setting the vision for and leading the marketing and communications team, including media and public relations, brand and creative, mission materials, digital, social, and web marketing, lead generation and acquisition, and strategic communications. This person will also collaborate closely with the CEO and executive team to develop, execute, and evaluate the organization’s strategic vision.
This position may be a fully remote position, not based in the Washington, D.C. office.