Including More Voices: Improving Diversity and Representativeness – The Now Virtual NHC Science of Patient Engagement Symposium
By Silke Schoch, Manager, Research & Programs
Registration is open for the NHC Science of Patient Engagement Symposium. Our theme this year is Including More Voices: Improving Diversity and Representativeness and will be held virtually for the first time on September 29 & 30.
Our objective is to highlight and share information on case examples in patient engagement focused on diversity and representativeness. Patient-engagement activities must include diverse and representative patients. By doing so, we achieve better quality research that has the potential to improve patient outcomes for all. In the past, patient engagement in research and personal health care in general was very poor, but it is improving. We also know there has to be improvement in engagement of diverse and representative populations. The program is intended to discuss the issues, highlight methods to improve, and provide examples.
This NHC Symposium brings together medical, scientific, and research leaders from a variety of patient-advocacy organizations, nonprofit health groups, and industry, offering attendees a rare opportunity to connect, communicate, and learn from each other about the science of patient engagement.
We are excited to announce just a few of the many topics that will be covered:
- The Multi-Regional Clinical Trials Center’s new report on “Achieving Diversity, Inclusion, and Equity in Clinical Research” with a focus on Diverse Participant Engagement Strategies;
- Patient Organization approaches to improving representativeness; and
- FDA Efforts in Patient Engagement to Improve Representativeness and Diversity in Cancer Research.
Join us for these topics and much, much more!