Is Your Organization Interested in Developing a Patient-Centered Core Impact Set?
By: Silke Schoch, Senior Manager, Research & Programs
In 2022 the National Health Council (NHC) released its Blueprint for Developing Patient-Centered Core Impact Sets (PC-CIS). The Blueprint defines a PC-CIS as “a standardized, patient-derived and patient-prioritized list of the most important impacts a disease and/or its treatments have on a patient’s health and daily life, and that of their family and caregivers.”1 The Blueprint has seven development stages that include:
- Background and Overview
- Gathering Impact Data from Patients
- Prioritization by Patients
- Gathering Impact Data from Others
- Prioritization by Patients and Others
- Assembling the PC-CIS
As the next stage in this initiative, the NHC is interested in working with patient advocacy organizations and others that seek to implement the PC-CIS Blueprint. Blueprint implementation may have different project timelines depending on the organization’s access to up-to-date patient impact data. For example, PC-CIS Blueprint implementation can take less time and be less costly for organizations that have quality patient-centered data. Companies can use the “Is It Good Enough?” tool to assess how patient-centered their current data is.
If you are interested in implementing a PC-CIS, please reach out to Silke Schoch, Senior Manager of Research & Programs at [email protected].
If you are interested in sponsorship of the Patient-Centered Core Impact Sets initiative or other patient engagement programs please contact, Mary Crowther, Manager of Membership & Development, at [email protected].
National Health Council. Patient-Centered Core Impact Sets Blueprint. 2022. At: https://nationalhealthcouncil.org/a-blueprint-for-developing-patient-centered-core-impact-sets-pc-cis/