By: Silke Schoch, Senior Manager, Research and Programs 

The National Health Council (NHC) has opened the Patient-Centered Core Impact Sets (PC-CIS) Blueprint for public comment! A PC-CIS is a patient-derived and prioritized list of impacts a disease and/or its treatments have on a patient and their life, as well as that of their family and caregivers. The PC-CIS Blueprint gives its users a process for making use of the knowledge patients, caregivers, and families have about the impacts of a disease and treatment.  

It is equally important to account for diverse and representative groups of patients that can inform us about their lived experiences and what is most important to them. By utilizing meaningful patient engagement methods, organizations can help to provide the foundation for identifying and prioritizing the impacts of most concern. 

Parts of the Patient-Centered Core Impact Sets (PC-CIS) Blueprint include: 

• Background
• Guiding Principles 
• Use Cases Establishing Patient Leadership 
• Assessing and Building Readiness  
• Ensuring Transparency 
• Gathering Impact Data from Patients  
• Gathering Impact Data from Other Stakeholders 
• Prioritization of Impacts 
• And How to Assemble a PC-CIS 

You can view the draft PC-CIS Blueprint here and send us your comments here. The comment period is open until August 31, 2022. 

Also, don’t forget to join us on August 17, from 10:00 a.m. – 3:00 p.m. EST for a virtual Multi-Stakeholder Dialogue on Achieving Patient-Centered Core Impact Sets. Register here.  

The August 17 PC-CIS Dialogue is funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington Engagement Award (EASCS-24850).