Value Work Group The National Health Council’s Value Work Group meets on a regular basis by teleconference to share and learn from each other’s’ experiences, and to stay up-to-date on […]
Additional Resources
Policy Proposals for Reducing Health Care Costs
Our Policy Proposals for Reducing Health Care Costs The NHC released new recommendations in Sept. 2021. Read them here. The National Health Council (NHC) envisions a society in which all […]
Patient Perspectives on Real-World Evidence: Enhancing Engagement, Understanding, and Trust
Patient Perspectives on Real-World Evidence: A Roundtable to Gather Views, Needs, and Recommendations The topic of real-world evidence (RWE) has gained considerable attention recently. As health researchers, policymakers, and regulators […]
Tools to Support Sponsor-Patient Engagement: Fair-Market-Value Calculator and Engagement Templates
Sponsor-Patient Engagement Toolbox Eleanor Perfetto, PhD, MS, Executive Vice President of Strategic Initiatives, and Silke Schoch, Manager, Research & Programs, will present the NHC’s Patient Engagement Fair Market Value (FMV) […]
The National Health Council Rubric to Capture the Patient Voice: A Guide to Incorporating the Patient Voice into the Health Ecosystem
The National Health Council Rubric to Capture the Patient Voice: A Guide to Incorporating the Patient Voice into the Health Ecosystem The purpose of the National Health Council (NHC) Rubric […]
Improving the Use of Patient-Provided Information in Real-World Evidence Research
Improving the Use of Patient-Provided Information in Real-World Evidence Research Study Objective To understand how patient-provided information (PPI) – gathered through meaningful patient engagement – can be translated by researchers […]
Patient-Focused Medical Product Case Examples
Patient-Focused Medical Product Development Case Examples About Patient-Focused Medical Product Development Patient-focused medical product development is a mechanism by which stakeholders, including but not limited to medical product developers, academics, […]
Glossary of Patient Engagement Terms
The definitions of these terms, which includes Family Caregiver, Meaningful Engagement, and Patient-Focused Drug Development, stem largely from our patient engagement work, including our ‘Patient-Focused Drug Development – Recommended Language […]