What is the difference between health-related quality of life (HRQoL) and patient-reported outcomes? June 27, 2019 By Aimee Lee Russell, Associate, Programs On June 10, Laurie Burke, MPH, founder of […]
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Getting to Know: Jennifer Schleman, Senior Director, Marketing, Communications, and Public Relations
Getting to Know: Jennifer Schleman, Senior Director, Marketing, Communications, and Public Relations Following is a Q&A to get to know Jennifer Schleman, MPS, APR, Senior Director, Marketing, Communications, and Public […]
NHC Comments on Medicare Part D Reform Legislation
By Maddie Mason, Associate, Policy Many Medicare beneficiaries, including those enrolled in Part D plans, struggle to afford their medications due to high out-of-pocket (OOP) costs. To help combat this […]
Member Spotlight: Community Pharmacy Foundation
By Kelly Garrity, Senior Director, Membership Services and Development The Community Pharmacy Foundation (CPF) is a national non-profit organization that provides grants and funding for special projects and studies directly associated with […]
Member Spotlight: Pulmonary Fibrosis Foundation
By Kelly Garrity, Senior Director, Membership Services and Development The Pulmonary Fibrosis Foundation (PFF) serves as the leading patient advocacy organization dedicated to identifying effective pulmonary fibrosis (PF) treatments and […]
Webinar Preview: Perspectives on the FDA’s 2nd Patient-Focused Drug Development Guidance
By Maddie Mason, Associate, Policy On Friday, Dec. 13 from 2 – 3 p.m. ET/ 11 a.m. – noon PT, the National Health Council (NHC) and our member organizations will […]
NHC Comments on the Lowering Health Care Costs Act of 2019
By Maddie Mason, Associate, Policy The Senate Committee on Health, Education, Labor and Pensions released draft legislation on May 23, 2019 to reduce health care costs. The patient community has […]
NHC CEO Marc Boutin on Panel About Bayh-Dole Act
In 1980, the Bayh-Dole Act was passed. Since then, this piece of legislation has helped address gaps in the intellectual property framework surrounding federally-funded research and helps foster a robust […]
Join Us in Raising Awareness of These Causes in June
By Hannah Barnett, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give us the opportunity to rally […]
Lessons Learned from Developing a PRO Measure: The Experience of One Patient Advocacy Group
Lessons Learned from Developing a PRO Measure: The Experience of One Patient Advocacy Group By Silke Schoch, Senior Associate, Programs On May 14, 2019, Dory Kranz, CEO of the National […]