Helping patient advocates understand complex issues

The National Health Council encourages patients and patient advocates to be engaged in research, policy, medical-product development, quality-of-care, and value-of-treatment initiatives. We have developed the NHC Center of Educational Excellence, an e-learning resource, to help patients and patient advocates understand complex topics related to patient centricity in health care. Here you will find our webinar series on value and payment models as well as educational curriculums on quality measures and value assessments.

Value Classroom

The NHC Value Classroom features tools and resources for understanding value in health care and value assessment. These resources are intended to help patients and patient advocates engage in discussions on and the assessment of value.

Real-World Evidence Classroom

The NHC Real-World Evidence Classroom will feature introductory education, tools, and resources for patients and researchers alike. Sign up for an upcoming webinar and check back often as new materials are developed.

PCOR Training

The National Organization for Rare Disorders (NORD) recognized that to improve rare-disease patient engagement, training and support are needed. The NHC partnered with NORD and the University of Maryland to provide training on patient-centered outcomes research (PCOR) for the NORD membership.

Health Care Quality

The NHC's first online educational series, Increasing Patient-Community Capacity to Engage on Quality of Health Care, is comprised of six modules. It focuses on why quality is important in the current health care environment and how patients and patient organizations can become strong advocates for quality.

Patient-Focused Medical Product Development Series

There is growing interest in clinical outcome assessments, such as patient-reported outcomes, and patient-centeredness across the health care ecosystem. For example, in 2019, the FDA released two new guidance documents on clinical outcome assessment. The NHC seeks to ensure that the NHC membership is prepared to engage in conversations about clinical outcome assessment.

Upcoming Webinars

Additional NHC Webinars

Value

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