Alliance Development Manager, EveryLife Foundation for Rare Diseases

Location: This position may be a fully remote position, not based in the Washington, D.C. office.
Reports to: Senior Director of Development
Wage Category: $50,000 - $55,000

The EveryLife Foundation for Rare Diseases (EveryLife) is seeking an Alliance Development Manager to join its team.

The EveryLife Foundation is a science-based nonprofit, nonpartisan advocacy organization dedicated to bringing treatments to the 30 million Americans with rare diseases. The science exists for many of these diseases to be treated; however, treatments may never be developed because of roadblocks in the development process, such as a lack of investment and a challenging regulatory environment. The Foundation works with patient advocates, lawmakers, industry, academic scientists, the Food and Drug Administration (FDA), and National Institutes of Health (NIH) to advance the equitable development of and access to lifesaving diagnoses, treatments, and cures.

The Alliance Development Manager supports the annual resource development plan through sponsorships, individual contributions, program partnerships, and grants. This position reports to the Senior Director of Development.

Principal Duties And Responsibilities

  • Work as part of the Development team to execute EveryLife’s annual fundraising plan;
  • Provide support in obtaining financial support from individuals, foundations, corporations, and other community stakeholders;
  • Support and execute strategy for growing a sustained base of annual individual donors;
  • Track proposals and reports for all Foundation and corporate fundraising;
  • Draft grant applications as outlined in the funding development plan to generate funds for the organization;
  • Prepare acknowledgment letters when financial support is received;
  • Assist in invoicing and managing the alliance development budget;
  • Assist in writing and submitting grant proposals and reconciliations;
  • Assist with the design, printing and distribution of marketing and communication materials for development efforts;
  • Build relationships with community stakeholders to advance the mission and fundraising goals of the organization;
  • Manage Salesforce to update and maintain applicable contacts, with a high degree of accuracy and completeness;
  • Participate in Foundation events; and
  • Other duties as assigned.
  • Occasional travel, weekend, and evening work may be required.


The Alliance Development Manager will have:

  • 1-2 years of experience in development, fundraising, or strategic partnership planning;
  • Strong organization and interpersonal skills;
  • Excellent communication skills including the ability to draft, copy edit, and speak publicly.

More Information


This is a full-time, direct-hire position. The salary range for this position is $50,000 – $55,000 commensurate with experience and includes a benefits package. Benefit package includes health, vision, and dental insurance, FSA, wellness reimbursement, cellphone stipend, WIFI stipend, 401k 6% match, and generous paid leave.

How to Apply

To apply, please send a current resume and cover letter to Megan Pinegar at [email protected].

Minimum Education

4-year degree preferred