Associate Director, Public Policy, The ALS Association

The Associate Director, Public Policy Meeting and Initiatives will report to the Vice President of Public Policy, and work as part of a team with the Director for Government Affairs and the Director for Grassroots Advocacy. The successful candidate will implement the Association’s nationally driven, year-round, nationwide grassroots advocacy and public policy program; support the implementation of legislative work and play a lead role in the planning of an annual Fly-In of about 100 attendees, the National ALS Advocacy Conference of about 800 attendees, and other advocacy events as needed.

Principal Duties And Responsibilities

Core duties and responsibilities include the following. Other duties may be assigned:

  • Execute comprehensive advocacy campaigns, in collaboration with the Vice President, Public Policy Assoc., the Dir. of Govt. Affairs, the Director of Grassroots Advocacy, as well as the Mission and Communications team. Craft first drafts of action alerts, set-up and send advocacy emails and coordinate timing of action alerts with the Communications team.
  • Support the implementation of legislative work, including but not limited to the submission of appropriations request forms for all relevant House and Senate offices, conducting research and managing projects related to legislative or policy issues.
  • Plan/implement in-person and/or virtual annual Chapter Fly-In (approx. 100 participants), National ALS Advocacy Conference (approx. 600+ participants), grassroots advocacy webinars and other advocacy events as needed in collaboration with and oversight by the Director of Grassroots Advocacy. This includes assisting with all logistical and technological aspects of the event, including:
    • Mastering conference software and creating all aspects of event infrastructure including website, registration, registrant communications, plenary and breakout sessions, and evaluations. Coordinate with Communications team to update the Association’s conference website page, as needed.
    • Managing Advocacy Conference planning team meetings, including the creation of agendas, note taking and following up on action items.
    • Communications and coordination with outside speakers to ensure timely event preparation.
    • Providing guidance on the use of appropriate videoconferencing platforms.
    • Engage/direct cross Association staff team support and troubleshoot all event needs.
  • Craft high-quality communications, toolkits, blogs, fact sheets, and other materials necessary to support advocacy activities for both grassroots advocates and grasstops chapter/volunteer leaders. Work closely with the Director of Grassroots Advocacy and Communications team to ensure materials are consistent with the Association’s brand and message strategy.
  • Manage the sharing and utilization of advocate data with chapters and manage data maintenance and troubleshooting in Quorum, the Association’s advocacy CRM. Implement updates to the Association’s public facing Advocacy Action Center.
  • Oversee regular updates to and maintain the Advocacy components of the Association website in collaboration with the Communications team. Manage full utilization and updates to the Advocacy and Public Policy section of the Association’s intranet. Manage the creation and submission of regular cross Association updates for staff and volunteer newsletters.
  • Coordinate logistics of Public Policy Committee meetings with the Association’s Governance team. Manage the creation of team updates for the Association’s Board of Directors.
  • Represent the Association in meetings with national organizations and federal policymakers.
  • Contribute to and support team efforts for annual department strategic planning.
  • Collaborate with the Public Policy, Care Services, Research, Communications and Development departments to advance the organization’s strategic plan.
  • Provide administrative support as needed to Vice President of Public Policy. This includes handling regular department invoices, and the communication and scheduling meetings with internal and external stakeholders.
  • Other duties as assigned, including staff support for committees/task forces or special projects.
  • Travel on Association business as requested or required.
  • Convey a professional image that reflects favorably on The ALS Association.


  • Bachelor’s degree with 3-5 years of work experience in health care government affairs and advocacy or the equivalent combination of education and work experience.
  • Experience planning and implementing national advocacy events including a Fly-In and Annual Meeting in collaboration with conference planning team.
  • Experience planning and directing grassroots advocacy campaigns in a nonpartisan fashion and in collaboration with coalition efforts.
  • Experience in the use of social media working in collaboration with a communications team
  • Experience using advocacy software such as Quorum, managing an advocacy database and knowledge of advocacy analytics for evaluating advocacy campaign performance
  • Demonstrated proficiency in Microsoft Office Products and familiarity with database programs.
  • Demonstrated, excellent written and verbal communication skills, as well as analytical skills
  • Excellent project management skills.
  • Excellent organizational skills and ability to hand multiple projects simultaneously.
  • Strong interpersonal skills and the ability to work well in a fast-paced environment with all levels of internal management and volunteers, as well as legislative staff and other elected officials.

More Information

All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability or protected veteran status.

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Apply here.