Regional Development Officer, Huntington’s Disease Society of America

Location: Remote in Pacific West Region
Reports to: National Director of Field Operations
Wage Category: $85,000-$95,0000 based on experience

About HDSA

The Huntington’s Disease Society of America (HDSA) is the nation’s leading nonprofit organization dedicated to improving the lives of individuals and families affected by Huntington’s disease. Guided by a singular mission and a deep commitment to community, HDSA delivers comprehensive support through education, advocacy, community services, and research, providing help for today and hope for tomorrow. As the field stands on the threshold of potential disease-modifying therapies, HDSA is advancing a bold, forward-looking strategic plan to expand access, strengthen care infrastructure, and prepare the community for this transformative era. With an annual operating budget of approximately $13 million, a diversified revenue portfolio that includes philanthropy, grants, corporate partnerships, and signature events, and stewardship of a $10 million investment and banking portfolio to ensure long-term sustainability, HDSA is poised for growth. We seek mission-driven professionals who value integrity, collaboration, and meaningful impact, and who are inspired to help shape the organization’s financial strength and future during this pivotal time.

Position Description:

The Regional Development Officer (RDO) – Pacific/West Region is responsible for driving sustainable revenue growth, deepening community engagement, and strengthening volunteer leadership infrastructure to advance HDSA’s mission across the region.

This role leads a comprehensive regional fundraising and community development strategy focused on donor cultivation, corporate and foundation partnerships, peer-to-peer campaigns, and signature special events. The RDO also serves as a strategic partner to Chapters and Affiliates by developing stronger communities, to building strong volunteer leadership pipelines, ensuring board sustainability, and expanding mission engagement activities that support families impacted by Huntington’s disease.

This is a full-time, exempt, remote position that can be based in any of the key market areas within the Pacific/West Region. The RDO reports to the National Director of Field Operations and plays a critical role in ensuring HDSA’s financial strength and volunteer sustainability in the Pacific/West Region. By integrating fundraising excellence with community engagement and leadership development, this position directly advances HDSA’s ability to serve and support families affected by Huntington’s disease — particularly as demand for care, education, and advocacy continues to grow.

Principal Duties And Responsibilities

Revenue Growth & Donor Strategy

  • Develop and execute a regional development plan to achieve and exceed annual revenue goals.
  • Lead planning, execution, and evaluation of signature fundraising events and peer-to-peer campaigns.
  • Cultivate, solicit, and steward individual donors, sponsors, corporate partners, and foundation funders.
  • Identify and grow mid-level and major donor prospects through strategic relationship management.
  • Expand sponsorship portfolios and grant opportunities aligned with regional priorities.
  • Ensure accurate tracking, reporting, and stewardship within HDSA’s donor database.

Community Engagement & Regional Expansion

  • Serve as HDSA’s primary ambassador in the Pacific/West Region, strengthening visibility and mission presence.
  • Build meaningful relationships with families, Centers of Excellence, healthcare partners, and community stakeholders.
  • Identify opportunities to expand HDSA programming, events, and outreach into emerging markets.
  • Support mission-related initiatives, including education days, awareness campaigns, and community gatherings.

Volunteer Leadership & Chapter Development

  • Partner with Chapter and Affiliate leaders to recruit, develop, and retain strong volunteer Boards and committees.
  • Provide strategic guidance on governance, succession planning, and leadership continuity.
  • Support volunteer engagement strategies that diversify fundraising, programming, and community outreach activities.
  • Strengthen alignment between local volunteer efforts and HDSA’s national strategic priorities.
  • Foster a culture of accountability, collaboration, and shared growth across the region.
  • Support and maintain a working knowledge of organizational mission initiatives, including advocacy, community services, and education, research and awareness activities.
  • Assist Chapters and Affiliates with the preparation of annual budgets and income projections to support mission activities in their communities and regularly review revenue and expenses, progress to goals, and the status of pledges and gifts.
  • Stay aware and informed of the status of the HD drug development pipeline, HDSA-funded research, and HDSA mission programs and services.
  • Maintain collaborative team relationships with peers and colleagues in order to effectively contribute to the society’s achievement of goals and help foster a positive work environment.
  • Consistently apply the society’s organizational values of HD Families First, Honesty & Integrity Always, Respect, and Collaboration in everything we do.
  • Develop a personal commitment and understanding of Huntington’s disease and those who have it and be able to articulate the programs of HDSA that need support.

Qualifications

Qualifications:

The successful candidate will meet the following qualifications:

  • Bachelor’s degree required; advanced degree or CFRE preferred.
  • 6-8+ years of progressive nonprofit development leadership experience with direct accountability for $750,000-$1.5M in annual revenue.
  • Demonstrated success leading multi-channel fundraising strategies, including major gifts, corporate partnerships, foundation grants, and large-scale peer-to-peer or signature events.
  • Proven ability to build and manage high-performing regional teams, including direct supervision of development staff and strategic partnership with volunteer Boards.
  • Ability to manage, direct and inspire colleagues, sponsors, and volunteers.
  • Strategic thinker with experience developing multi-year regional growth plans aligned with national organizational strategy.
  • Financial acumen including budgeting, revenue forecasting, and performance analysis.
  • Skilled communicator and external ambassador capable of representing the organization with volunteers, corporate executives, clinicians, and high-capacity donors.
  • Ability to travel regionally (25–30%) and operate effectively by working with a large, geographically diverse volunteer team.
  • Proficient knowledge of Microsoft Office Suite, Donor databases, and peer to peer event platforms a must.

More Information

Why Join Us?

We offer a mission-driven culture and highly supportive work environment. HDSA is an equal opportunity employer and committed to diversity. We’re proud to support our team with a comprehensive and generous benefits package that prioritizes well-being, security, and time to recharge:

Full Coverage Healthcare:

  • 100% premiums covered for employees enrolled in our baseline medical, dental, and vision plans.
  • 70% of premiums covered for enrolled dependents under the same plans.

Protection & Peace of Mind:

  • We fully cover short-term and long-term disability insurance.
  • 100% of the premium paid for life insurance for all employees.

Retirement Savings:

  • 5% company contribution to your 403(b)-retirement plan- no match required, after just 1 year of employment.

Paid Time Off + Company-wide breaks:

  • Generous PTO package.
  • Enjoy one full week off in July and one full week off in December, in addition to standard PTO.

Please send your cover letter and resume to: careers@hdsa.org

*Applications without a cover letter will not be considered*

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