Director of Patient Access, National Bleeding Disorders Foundation

Location: This position is a remote and open to candidates located anywhere in the U.S. Applicants should be comfortable working remotely with a team dispersed across the country. This role requires some travel typically 2-3 times a month, which includes overnight events and to our annual Bleeding Disorders Conference.
Wage Category: $85,000 - $100,000

About The National Bleeding Disorders Foundation (NBDF)
The National Bleeding Disorders Foundation (NBDF) is dedicated to finding cures for inheritable blood disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy, enabling people and families to thrive. Learn more at Bleeding.org!

About the Role
The Director of Patient Access leads and strengthens partnerships that improve healthcare access for individuals with bleeding disorders. In this role, you will evaluate, negotiate, and build relationships with community leaders, payers, and Hemophilia Treatment Centers (HTCs), driving innovative solutions that enhance access to care. You will provide project leadership and expertise in researching, analyzing, and implementing NBDF’s payer and access strategies, policies, and programs. This position also plays a pivotal role in addressing complex issues related to the administration and operations of existing and potential healthcare providers, offering guidance through policy development, education, and best practice implementation.

Principal Duties And Responsibilities

Strategic Leadership and Policy Development

  • Collaborate with the SVP of Access and Public Policy to design and implement NBDF’s payer relations strategic plan.
  • Conduct research and analysis to develop strategies, policies, and recommendations for healthcare access and legislative or regulatory changes.
  • Manage and direct the department’s strategic planning and annual budgeting
  • Design and oversee evaluative studies to support policy and program decisions on emerging issues in healthcare access and

Stakeholder Engagement and Advocacy

  • Build and maintain partnerships with payers, Hemophilia Treatment Centers (HTCs), and community leaders to foster collaboration.
  • Represent NBDF at payer conferences, trade organization meetings, and advocacy events to promote HTCs as Centers of Excellence.
  • Collaborate with decision-makers from payers, brokers, consultants, employers, and government agencies to advance NBDF’s mission.
  • Participate in federal and state public payer initiatives as directed by the SVP of Public Policy and

Program Oversight and Operations

  • Oversee pilot programs developed under the Comprehensive Care Sustainability Collaborative (CCSC), ensuring operational efficiency and compliance with agreements.
  • Supervise the development of outreach materials and other communication efforts led by the CCSC communication committee.
  • Provide leadership to HTCs and other stakeholders on reporting requirements and compliance with payer standards.
  • Address patient- and HTC-specific issues, providing case-specific guidance and insights.

Education and Event Management

  • Educate providers, physicians, and insurance administrators on NBDF policies, billing procedures, and access strategies.
  • Lead the planning and execution of NBDF’s annual Insurance and Reimbursement
  • Draft, edit, and review educational materials, white papers, and presentations for accuracy and consistency, and clarity.

Compliance and Reporting 

  • Stay informed of 340B program requirements and ensure alignment with current healthcare billing and reporting standards.
  • Identify and address access challenges arising from marketplace changes, disseminating relevant updates to HTCs and community stakeholders.
  • Adhere to all internal reporting requirements, including weekly updates and financial documentation.

Qualifications

To qualify for this unique opportunity, our ideal candidate should have the following experience and education:

  • A Bachelor’s degree in public policy, administration, business administration, or a related field; a graduate degree is a plus.
  • At least 8 years of experience in public policy analysis, education, administration, and/or government relations/affairs, with a focus on healthcare or payer relations.
  • At least 3 years of experience in 340B operations, health practice management, and insurance billing/reporting.
  • Strong research, policy analysis, writing, and oral communication skills, with the ability to distill complex information and present it concisely.
  • Strong interpersonal skills, with the ability to work independently and collaborate effectively with diverse stakeholders, including consumers, advocates, government officials, and remote
  • Ability to assess and understand the long-term impact of policy decisions and strategies in the healthcare space.
  • Demonstrated experience working with federal healthcare programs, commercial payers/providers, and managed care organizations.
  • Proficient in MS Office Suite, internet research, and database management
  • Knowledge of healthcare policy and experience with hemophilia and/or blood disorders is a
  • As a Director of Patient Access, how results are achieved is paramount for your success and ultimately results in our success as an organization. In this role, your foundational knowledge, skills, abilities, and personal attributes are anchored in the following:

Communication – You clearly convey information and ideas to individuals and groups through a variety of communication modalities, both formal and informal. You practice attentive and active listening and can synthesize and incorporate information from multiple resources into current discussions.

Project Management- You have the discipline of planning, organizing, and managing resources to bring about the successful completion of specific projects. You have the ability to plan, organize, monitor, and control projects and events, ensuring efficient utilization of technical and administrative resources to achieve project objectives.

Working Strategically – You are willing to align your priorities, planning, and action with the organization’s strategic objectives. You have a knack for identifying patterns or connections between complex and ambiguous situations that are not obviously related, and you use these to come to conclusions about key issues that affect the organization’s priorities. You always look ahead at the landscape and future possibilities, translating them into breakthrough strategies. You maintain strategic business performance.

Relationship Building – You build both formal and informal professional relationships. You maintain and foster relationships within, across, and external to organizational boundaries. You actively seek advice, support, championship, sponsorship, and commitment that result in smooth transitions of change and the development of mutually acceptable solutions.

In addition, all NBDF employees focus on aligning their behaviors to our core values known as Behavioral Standards which are Respect, Accountability, Service, and Support.

More Information

What We Offer
At NBDF our mission is to serve those affected by all inheritable bleeding disorders. We are committed to our employees as well as those we serve. To do so, NBDF seeks and values those qualities, both visible and invisible, that make individuals unique. We strive to be a safe place where regardless of age, color, disability, gender, gender identity, gender expression, family status, national origin, race, ethnicity, or sexual orientation; you are heard, empowered, and valued because we truly believe that every person brings a unique perspective and experience to advance our mission.

In order to attract and retain a high-performance team, we offer a dynamic and rewarding work environment. In addition to a competitive salary, NBDF provides a comprehensive health and wellness program to eligible employees, family members and domestic partners. Our health and wellness programs include medical, dental, vision, prescription drug, preventative care, mental health services and an employee assistance/ work-life balance program. We also offer:

  • Full time employees: Three weeks (+)of vacation, four personal days, 12 sick days, 11 paid holidays, 1 Floating Holiday, and the Holidays’ week off (between Christmas and New Years’).
  • We offer paid time off to Part-Time
  • Paid Short-Term Disability insurance & Life
  • Pre-tax savings plan (including Flexible Spending Accounts and Commuter Transit Account).
  • A 403(b) retirement plan with automatic contributions based on years of
  • Paid Caregiver/Parental

Compensation
We have carefully considered industry benchmarks, the experience required for this position, and internal salary comparisons to determine the appropriate salary range for this role. For this position, NBDF has set a starting base salary range $85,000-$100,000 and it is non-negotiable due to our company’s commitment to maintaining internal pay equity. This approach ensures that we maintain a fair and consistent compensation structure across the organization.

To apply, please submit your application by [clicking here]. For any questions or concerns, contact us at hr@bleeding.org.

Research shows that candidates from marginalized populations are less likely to apply for jobs unless they believe they meet every single one of the qualifications in a job description. NBDF is committed to building a diverse, equitable, and inclusive organization. We strongly encourage interested individuals to apply, even if they don’t believe they have every quality, strength, and experience listed above. We especially encourage applicants with the lived experience of disability to apply for roles in our organization. All necessary accommodation can be provided during the interview and the on-boarding process.

All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability status, protected veteran status, or any other characteristic protected by law. People of color, members of Tribal Nations and Native communities, LGBTQ-identified people, gender-nonconforming people, people with disabilities, veterans, and people who speak a language in addition to English are strongly encouraged to apply.