Our Mission: The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical and efficient manner. Approximately 50 million Americans, 20 percent of the population or one in five people, suffer from one or more autoimmune diseases. AARDA is the only national nonprofit organization dedicated to bringing a national focus on the commonality among the over one hundred recognized autoimmune diseases, a major cause of serious and chronic diseases.
• Improving the understanding, diagnosis, treatment, and eventual cure for autoimmune diseases.
• Increasing national awareness of the etiologic commonality between autoimmune diseases.
• Increasing research funding for all autoimmune diseases and their commonalities.
• Creating a strong common voice among autoimmune patient groups on shared public policy issues to
the Congress, federal administration, state government, the healthcare community, and the public.
• Improving research on autoimmune diseases through AARDA’s grants, colloquies, publications, and
• Enhancing affordable access to specialty care and safe cutting-edge therapeutics for all autoimmune
Principal Duties And Responsibilities
Duties & Responsibilities:
The CEO has full responsibility and accountability for the success, mission accomplishment, and financial viability of the AARDA organization. The CEO provides leadership, working under the general priorities and guidance of the Board of Directors, to formulate and pursue the vision and mission of the organization, as expressed in AARDA’s five-year strategic plan. The CEO provides overall direction of internal and external policy and program development and oversees all organizational operations. The CEO serves as the chief spokesperson for the organization and primary liaison with the health care community. The CEO is also primarily responsible for developing revenue sources to support approved programs. The CEO holds office at the pleasure of the Board and reports directly to the Board. The CEO serves as a voting member of the Board. The CEO has the power to designate, appoint, or remove agents or employees of the organization with the exception of the AARDA Founder/President Emeritus/Advisor to the President & CEO.
• Provides dynamic leadership to ensure AARDA fulfills its potential on behalf of autoimmune patients in the 21st Century.
• Demonstrates dynamic leadership skills, an in-depth knowledge of the health field and public policy issues relative to healthcare, autoimmunity, pharmaceutical pricing and reimbursement.
• Displays strong organizational and supervisory skills, including planning, delegating, and program development, and creates a “team” spirit with staff, volunteers, committees, and Board of Directors.
• Responsible for maintaining the financial integrity, sustainability, and growth of AARDA, as well as individual and corporate donor relations, and provides planned giving and fundraising support.
• Supervises activities of the National Coalition of Autoimmune Patient Groups.
• Develops an operational annual budget and operating plan from the Board-approved five-year strategic plan.
• Guides strategic planning and implementation of yearly Board-approved operational plan.
• Serves as primary spokesperson for AARDA.
• Works with relevant staff and Board members to develop and execute a strategy to maintain and increase AARDA’s fundraising capability.
• Develops and executes a strategy to maintain and increase AARDA’s resources by working with the Board to identify, cultivate and solicit new donors and in-kind services.
• Implements Board-approved policies and procedures for day-to-day operations.
• Supervises and collaborates with organization’s staff.
• Supervises and collaborates with Founder/President Emeritus, with regular feedback and recommendations to Board on consultant roles, responsibilities, and performance.
• Organizes, oversees, and attends organization’s Board and committee meetings.
• Oversees all accreditation entities to assure AARDA is in compliance and is following all guidelines.
• Responsible for annual audit preparation.
• Reviews and approves contracts for services within Board-established policies.
• Ensures corporate grant process aligns with AARDA’s overall goals and programming.
• Reports and works closely with Board of Directors on policy development and strengthening the continuity of goals and programs.
• Oversees marketing and communications efforts.
• Performs other duties as assigned by Board of Directors.
• At least 15 years of experience in influential leadership positions related to healthcare advocacy.
• At least 15 years of experience managing nonprofit healthcare management including supervising.
• A thorough understanding of healthcare public policy and government affairs and how nonprofit organizations can be influential.
• A thorough understanding of current healthcare public policy issues and regulatory systems including healthcare reform, biologic and biosimilar pharmaceuticals, therapeutic safety and affordability, Medicare and Medicaid reform.
• An understanding of the changing medical research system and funding.
• A dynamic leadership style with the ability to communicate effectively with other executives at all levels, relationship building, public speaking experience, and fundraising.
• Successful experience working with a nonprofit board of directors.
• A motivated, self-starter who can work with minimum supervision.
• The ability to balance multiple projects and relationships while focusing on mission accomplishment, financial sustainability, the strategic plan, and day-to-day supervision of staff and relationship with the Board of Directors.
• Unwavering integrity and personal ethics.
• Strong visionary, interpersonal, communications, and public speaking skills.
• A strong passion for patients, advocacy, and autoimmunity.
• Flexibility and adaptability.
Qualified candidates should submit a cover letter and resume to [email protected], with the subject line President/CEO Application, no later than Monday, March 8, 2021.
Read the full job description, here.