Advanced Research Projects Agency for Health (ARPA-H)
On behalf of the National Health Council, I am happy to respond to your Request for Information (RFI) on the creation of the Advanced Research Projects Agency for Health (ARPA-H). We are grateful for your continued leadership in crafting a path forward for advancing health research in a way that supports patients.
Created by and for patient organizations 100 years ago, the National Health Council (NHC) brings diverse organizations together to forge consensus and drive patient-centered health policy. We promote increased access to affordable, high-value, sustainable health care. Made up of more than 140 national health-related organizations and businesses, the NHC’s core membership includes the nation’s leading patient organizations. Other members include health-related associations and nonprofit organizations including the provider, research, and family caregiver communities; and businesses representing biopharmaceutical, device, diagnostic, generic drug, and payer organizations.
The NHC shares your desire to both increase investment in health research and to “drive transformational innovation in health research and speed application and implementation of health breakthroughs.” To meet the goals of creating breakthroughs that will best benefit people with chronic conditions, ARPA-H must have the correct structure, staff, partners, and mission. Our comments focus on ensuring that the new ARPA-H prioritizes timeliness, high risk/high reward solutions, patient engagement, partnerships with the private sector and other Federal agencies.
Also importantly, we appreciate and support the funding requested in the President’s budget proposal and will continue to work to ensure that this funding is available and not provided at the expense of other federal research efforts. Your work to create authorizing language to support this funding request is greatly appreciated. Our responses below to your specific questions will help assure ARPA-H best delivers needed treatments and cures.