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The National Health Council (NHC) and its partners have undertaken a process to create a Blueprint for developing patient-centered core impact sets, or PC-CIS, to address inconsistencies between what is important to patients to the information typically collected in research and care. A PC-CIS is a patient-derived and -prioritized list of impacts a disease and/or its treatments have on a patient and his/her life as well as that of their family and caregivers.
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