The VHL Alliance is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by von Hippel-Lindau disease. VHL disease is a […]
Archives
Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society is at the forefront of the fight to cure cancer. We are the largest nonprofit dedicated to creating a world without blood cancers. Since 1949, […]
Parkinson’s Foundation
Parkinson’s disease (PD) is a neurodegenerative disorder that affects predominately dopamine-producing (“dopaminergic”) neurons in a specific area of the brain called substantia nigra. Symptoms generally develop slowly over years. The progression […]
International Rett Syndrome Foundation
Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression […]
International Fibrodysplasia Ossificans Progressiva Association (IFOPA)
Fibrodysplasia ossificans progressiva (FOP) is one of the most rare genetic conditions known to medicine. FOP causes bone to form in muscles, tendons, ligaments and other connective tissues. IFOPA provides […]
NAMI
A mental illness is a condition that affects a person’s thinking, feeling or mood. Such conditions may affect someone’s ability to relate to others and function each day. The National […]
Crohn’s & Colitis Foundation
Crohn’s disease is an inflammatory bowel disease that causes chronic inflammation of the gastrointestinal tract. Ulcerative colitis is a chronic disease of the large intestine, in which the lining of […]
Hemophilia Federation of America
Hemophilia is a condition in which the ability of the blood to clot is reduced, causing the sufferer to bleed severely from even a slight injury. Hemophilia Federation of America, […]
American Diabetes Association
Diabetes comes in two forms. In type 1 diabetes the body does not produce insulin. In typle 2 diabetes, the body does not use insulin properly. The American Diabetes Association […]
Spina Bifida Association
Spina Bifida is the most common permanently disabling birth defect that is associated with life. Approximately 166,000 individuals in the United States have Spina Bifida.