EveryLife Foundation

Contact Info

  • 1012 14th Street, NW, Suite 500
    Washington, DC 20005
  • 202-697-RARE(7273)
  • Click to visit website

The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to advancing the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy. The Foundation does not speak for patients, but instead provides the training, education, resources and opportunities to make patient voices heard. By activating the patient advocate, the Foundation believes it can change public policy and save lives.