Hydrocephalus Association

  • 4340 East West Highway
    Suite 905
    Bethesda, MD 20814
  • 301-202-3811

The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

The photos on our site provide a window into our community: the millions of people of all ages all over the world living with hydrocephalus, their families and friends, and the medical, scientific, care-giving and teaching professionals who work with them.

Founded in 1983 and incorporated as a nonprofit in 1986, the Hydrocephalus Association is the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus. More than 60% of our funding comes from individual donations, memberships and events. Approximately 35% comes from foundation and corporate grants. We are governed by a Board of Directors and employ a staff of ten. Our Medical Advisory Board includes 22 prominent professionals, who are respected leaders in hydrocephalus research and treatment.

The Hydrocephalus Association strives to run a financially healthy and responsive nonprofit organization by wisely administering the funds with which we are entrusted. You are welcome to review our latest annual report and our latest 990 filing.

This organization has completed the National Health Council’s Standards of Excellence Certification Program and meets the highest standards of accountability, ethical practice, organizational effectiveness, and good public stewardship.

To learn more, click on the links below.