PCORI Board-Approved Guiding Principles
The following is a statement by Randall Rutta, Chief Executive Officer, National Health Council:
The National Health Council (NHC) applauds the Patient-Centered Outcomes Research Institute (PCORI) Board of Governors, who today approved guiding principles ensuring the full range of burdens and economic impacts on patients is considered in PCORI-funded research. We are proud to have worked with Congress to include this provision in the PCORI reauthorization bill, directing PCORI-funded researchers to produce more holistic evidence relevant to patient decision making. This is something our experience shows is critical to patients. We look forward to helping PCORI put these principles into action, develop needed methods, and ultimately help people with chronic diseases and disabilities achieve the outcomes that are meaningful to them.
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Created by and for patient organizations 100 years ago, the National Health Council (NHC) brings diverse organizations together to forge consensus and drive patient-centered health policy. We promote increased access to affordable, high-value, sustainable health care. Made up of more than 140 national health- related organizations and businesses, the NHC’s core membership includes the nation’s leading patient organizations. Other members include health-related associations and nonprofit organizations including the provider, research, and family caregiver communities; and businesses representing biopharmaceutical, device, diagnostic, generic drug, and payer organizations. Learn more at: https://www.nationalhealthcouncil.org.