Patient Community Training on Value Assessment

September 6, 2019

On Friday, September 6, 2019, the National Health Council convened a training for patients and patient organizations to learn about value assessment. Read the Executive Summary here.

Watch interviews with speakers here.

Below are direct links to each video:

This program was funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (8620-NHC).

Disclaimer: The views presented in this report are solely the responsibility of the speakers and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute® (PCORI®), its Board of Governors, or Methodology Committee.

 

Meeting format: Day-long conference

Objective for the day: Introduce staff and members of patient and community organizations to value assessment in the US with emphasis on inclusion of the patient voice and use of findings. Introductory and intermediate training was offered.

Attendees learned how to:

  1. Explain important terms related to value assessment
  2. Identify the role and impact of value assessment in the US healthcare system
  3. Describe opportunities for patient engagement in value assessment
  4. Identify value assessment resources for patient groups to become engaged
  5. Communicate the importance of patient engagement in value assessment to others within their organization

AGENDA

8:30-9:00 a.m. Registration and Continental Breakfast
9:00-9:10 a.m.

9:10-9:30 a.m.

Welcome and Overview

  • Eleanor Perfetto, PhD, MS, Executive Vice President, Strategic Initiatives, National Health Council

View the slides.
Value and the Current Health Care Environment

  • Elisabeth Oehrlein, PhD, MS, Senior Director, Research & Programs, National Health Council

View the slides.

9:30-10:00 a.m. A Primer on Value Assessment and the Lingo

  • Joey Mattingly, PharmD, MBA, PhD, Associate Professor, University of Maryland School of Pharmacy

View the slides.

10:00-10:45 a.m. Case Studies of Patient Involvement in Value AssessmentModerator: Eleanor Perfetto, PhD, MS, Executive Vice President, Strategic Initiatives, National Health Council

  • Julie Block, President & Chief Executive Officer, National Eczema Association
  • Anna Hyde, MA, Vice President, Advocacy & Access, Arthritis Foundation
  • Leslie Ritter, MA, Senior Director, Advocacy, National MS Society
10:45-11:00 a.m. Break
11:00 a.m.-12:00 p.m. The Role of Value Assessment in Payer Decision-MakingModerator:  Eric Gascho, Vice President, Policy & Government Affairs, National Health Council

  • Leah Howard, JD, Chief Operating Officer, National Psoriasis Foundation
  • John R. Miller, Executive Director, MidAtlantic Business Group on Health
  • Surya Singh, MD, Consultant, Former Chief Medical Officer for Specialty at CVS Health
12:00-12:35 p.m. Lunch
12:35-1:10 p.m. Keynote: My Experience Participating in a Value Assessment

  • Brandi Akins, Spinal Muscular Atrophy (SMA) Patient Advocate
1:10-1:25 p.m. Break
Breakout sessions

 

Introductory Intermediate
1:25-2:20 p.m. Breakout Group 1, Part 1: Organizations New to Value Assessment
What Does a Value Assessment Actually Look Like and How Can I Engage?
Moderator: Eleanor Perfetto, PhD, MS, Executive Vice President, Strategic Initiatives, National Health Council
Panel Discussion

  • Jennifer Bright, MPA, Executive Director, Innovation and Value Initiative
  • Sarah Emond, MPP, Executive Vice President & Chief Operating Officer, Institute for Clinical and Economic Review (ICER)
  • Alyssa Schatz, MSW, Director, Policy & Advocacy, National Comprehensive Cancer Network®
  • Bari Talente, JD, Executive Vice President, Advocacy, National MS Society
Breakout Group 2, Part 1: Organizations Who Have Been through Value Assessment
Objective: To create a list of common issues and/or questions organizations have faced and how they dealt with them to be a resource for the organizations who have not been through the process beforeDiscussion leaders:

  • Annie Kennedy, Senior Vice President, Legislation & Public Policy, Parent Project Muscular Dystrophy
  • Rosie Love, MPH, PhD Candidate, University of Maryland, Baltimore

Note-takers:

  • Aimee Lee Russell, Associate, Programs, National Health Council
  • Silke Schoch, Senior Associate, Programs, National Health Council
2:20-2:30 p.m. Break
2:30-3:15 p.m. Breakout Group 1, Part 2: Organizations New to Value AssessmentAn Introduction to Resources

  • Eleanor Perfetto, PhD, MS, Executive Vice President, Strategic Initiatives, National Health Council
  • Elisabeth Oehrlein, PhD, MS, Senior Director, Research & Programs, National Health Council

View the slides.

Breakout Group 2, Part 2: Organizations Who Have Been through Value AssessmentsObjective: To create a list of common issues and/or questions organizations have faced and how they dealt with them to be a resource for the organizations who have not been through the process beforeDiscussion leaders:

  • Annie Kennedy, Senior Vice President, Legislation & Public Policy, Parent Project Muscular Dystrophy
  •  Rosie Love, MPH, PhD Candidate, University of Maryland, Baltimore

Note-takers:

  • Aimee Lee Russell, Associate, Programs, National Health Council
  • Silke Schoch, Senior Associate, Programs, National Health Council
3:15-3:25 pm Break

 

3:25-4:20 p.m. Communicating the Importance of Engagement in Value Assessment to your Board, Staff, and Constituents

  • Moderator: Jennifer Schleman, MPS, APR, Senior Director, Marketing, Communications & Public Relations, National Health Council
    • Cat Davis Ahmed, MBA, Vice President, Policy & Outreach, FH Foundation
    • Kenny Mendez, MBA, President & Chief Executive Officer, Asthma and Allergy Foundation
4:20-4:30 p.m. Wrap Up