The purpose of the Patient Experience Mapping Interview Guide (Interview Guide) is to help researchers engage and document patients’ experiences before getting a diagnosis, while getting a diagnosis, and living with a diagnosis. The guide was created by the National Health Council with funding from Allergan, AbbVie, Biogen, Boehringer Ingelheim, Gilead, Pfizer, and Sangamo Therapeutics. The Interview Guide is supplied for your convenience only and use of the Interview Guide in research is not a substitute for working with a knowledgeable researcher and receiving study approval and oversight from an Institutional Review Board.
The National Health Council provides this Interview Guide “AS IS, WHERE IS” AND WITHOUT WARRANTY OF ANY KIND, EITHER EXPRESS, IMPLIED, OR STATUTORY, INCLUDING BUT NOT LIMITED TO IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR PURPOSE, OR NON-INFRINGEMENT. The National Health Council makes no warranty that the Interview Guide will meet your requirements or be error-free. By using this interview guide, you agree that you rely on this Interview Guide at your own risk and the National Health Council, Inc., its partners, employees, agents, affiliates, and any party involved in creating, producing, or delivering the Interview Guide, shall have no liability to you for any claim arising from your use of this interview guide.