Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Observer-reported or Proxy-reported: Is One Better than the Other?

By Aimee Lee Russell, Programs Associate On February 24, the National Health Coucil held a webinar to discuss differences between caregiver-reported and proxy-reported outcomes, which are

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Getting to Know: Jennifer Dexter, Policy Director

Getting to Know: Jennifer Dexter, Policy Director Following is a Q&A to get to know Jennifer Dexter, Policy Director, who began working at the National

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Coronavirus Preparedness for People with Chronic Diseases

COVID-19 is causing significant concerns globally. During this webinar, the speakers discussed the ways patient groups can assist their members and other constituents in reducing the impact of COVID-19.

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National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov Modernization

The National Health Council (NHC) appreciates the opportunity to comment on the National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov modernization. Clinical trials

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Potential Aid for Industries Impacted by Coronavirus

Dear Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer: I write regarding prospective federal intervention to support the airline, travel, and other targeted industries impacted

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COVID-19 Updates

The National Health Council is monitoring the rapidly changing situation with COVID-19, also known as Coronavirus. You can follow the Washington Post’s live updates here.

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NHC Comments on the 2021 Notice of Benefit and Payment Parameters

By Maddie Mason, Senior Associate, Policy The Centers for Medicare and Medicaid (CMS) released their Proposed Rule, entitled “HHS Notice of Benefit and Payment Parameters

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As Value Assessment Evolves, The Patient Voice Must Not be Forgotten

As Value Assessment Evolves, The Patient Voice Must Not be Forgotten The blog below was published by the PhRMA Foundation on March 4, 2020. It

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April Health Care Reform Action Team

Contact Maddie Mason, Senior Associate, Policy, for more information.

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