Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Food and Drug Administration’s (FDA’s) Draft Guidance on Enhancing the Diversity of Clinical Trial Populations

08/06/2019

The National Health Council (NHC) appreciates the opportunity to provide comments on the Food and Drug Administration’s (FDA’s) draft guidance on Enhancing the Diversity of

Core Outcome Sets – What are They?

08/05/2019

By Aimee Lee Russell, Associate, Programs On Monday, July 15, Donna Messner, PhD, CEO and President of the Center for Medical Technology Policy (CMTP) introduced core

NHC 2019 Science of Patient Engagement Symposium Highlights Using Data Science, Technology, and Patient Engagement to Personalize Health Care

08/01/2019

By Silke Schoch, Senior Associate, Programs On October 28 and 29, the National Health Council (NHC) held its third annual Science of Patient Engagement Symposium

Join Us in Raising Awareness for These Causes in August

08/01/2019

By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

What Matters Most for Treatment Decisions in Hepatitis C: Effectiveness, Costs, and Altruism

07/30/2019

The following is an excerpt from a study co-authored by Eleanor M. Perfetto, PhD, MS, National Health Council’s Executive Vice President, Strategic Initiatives, published on

Getting to Know: Eric Gascho, Vice President, Policy and Government Affairs

07/29/2019

Getting to Know: Eric Gascho, Vice President, Policy and Government Affairs Following is a Q&A to get to know Eric Gascho, Vice President, Policy and

Medicare Advantage and Part D Rule: A win for patients, but out-of-pocket costs must be capped

07/26/2019

The following is an excerpt from an op-ed by National Health Council Chief Executive Officer Marc Boutin, published on July 25, 2019 in The Hill.

Patients need a health system that helps them make informed decisions

07/22/2019

The following is an excerpt from an op-ed by National Health Council Chief Executive Officer Marc Boutin and FasterCures Executive Director Tanisha Carino, published on

President Trump’s Executive Order on Pricing Transparency

07/22/2019

By Maddie Mason, Associate, Policy President Donald Trump delivered an executive order (EO) on June 24, 2019 titled “Improving Price and Quality Transparency in American