Wide Rande of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

COA Series: Core Outcome Sets

COA Series: Core Outcome Sets July 15, 2019 – This webinar featured Donna Messner, President & CEO at the Center for Medical Technology Policy.

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Member Spotlight: Lupus Foundation of America

By Kelly Garrity, Senior Director, Membership Services and Development The Lupus Foundation of America works to improve the quality of life for all people affected

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Introducing the NHC’s Rubric to Capture the Patient Voice

Introducing the NHC’s Rubric to Capture the Patient Voice July 11, 2019 – The webinar was in conjunction with the release of the NHC’s Rubric

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The National Health Council Announces the Release of a Rubric to Capture the Patient Voice

By Silke Schoch, Senior Associate, Programs Over the past few decades a cultural shift has been occurring in the health care ecosystem. There is finally

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NHC Letter in Support of a Cap on Out-of-Pocket Costs for Medicare Part D

Dear Chairman Grassley and Ranking Member Wyden: As the Senate Finance Committee is crafting legislation related to prescription drug and other health care costs, the

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Update: Lowering Health Care Costs Act of 2019

The Senate Committee on Health, Education, Labor and Pensions (HELP) advanced bipartisan legislation to lower health care costs with a 20-3 vote on June 26,

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NHC Standards of Excellence: Board and Governance Best Practices

In our last post we reviewed the ten minimum Standards of Excellence (Standards) that NHC voluntary health agencies (VHAs), also known as patient advocacy organizations,

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Join Us in Raising Awareness for These Causes in July

By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

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What is the difference between health-related quality of life (HRQoL) and patient-reported outcomes?

By Aimee Lee Russell, Associate, Programs On June 10, Laurie Burke, MPH, founder of LORA Group LLC and former Director of Study Endpoints and Labeling

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