Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Potential Aid for Patient and Community-Based Organizations Impacted by Coronavirus

03/20/2020

Dear Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer: The 217 undersigned organizations write regarding prospective federal intervention to support the airline, travel, and other

Domains of Patient Centeredness in Value Assessment

03/19/2020

Domains of Patient Centeredness in Value Assessment What are the key characteristics of patient-centered value assessment? Download

NHC Considerations Guide for Patient Organizations

03/19/2020

The National Health Council’s (NHC’s) Considerations Guide for Patient Organizations Developing Comments on a Value Assessment is intended to be used as a tool by

Enhancing the Patient-Centricity of Value Assessment: Pearls of Wisdom from Other Members of the Patient Community

03/19/2020

Enhancing the Patient-Centricity of Value Assessment: Pearls of Wisdom from Members of the Patient Community A list of recommendations developed by members of the patient

Glossary of Value Assessment Terms

03/19/2020

Click here for an infographic on value terminology. Below is a list of plain language definitions of terms used in value assessment. Base case analysis:

Observer-reported or Proxy-reported: Is One Better than the Other?

03/19/2020

By Aimee Lee Russell, Programs Associate On February 24, the National Health Coucil held a webinar to discuss differences between caregiver-reported and proxy-reported outcomes, which are

Getting to Know: Jennifer Dexter, Policy Director

03/16/2020

Getting to Know: Jennifer Dexter, Policy Director Following is a Q&A to get to know Jennifer Dexter, Policy Director, who began working at the National

Coronavirus Preparedness for People with Chronic Diseases

03/13/2020

COVID-19 is causing significant concerns globally. During this webinar, the speakers discussed the ways patient groups can assist their members and other constituents in reducing the impact of COVID-19.

National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov Modernization

03/12/2020

The National Health Council (NHC) appreciates the opportunity to comment on the National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov modernization. Clinical trials