Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Consent Designed For Patients By Patients: A New Consent Standard For Patients Participating In Life-Saving Research

02/13/2020

Consent Designed For Patients By Patients: A New Consent Standard For Patients Participating In Life-Saving Research Event Time: 2:00 p.m. ET Event Location: Webex This

Observer-reported or Proxy-reported: Is One Better than the Other?

02/11/2020

Observer-reported or Proxy-reported: Is One Better than the Other? Event Location: Webex This webinar featured Laurie Burke, MPH, Founder of the LORA Group, LLC, C.

President’s 2021 Budget Proposes Significant Cuts to Health Care

02/10/2020

Statement by Marc M. Boutin, JD, Chief Executive Officer The President’s 2021 budget, released today, aims to greatly slash spending on health programs on which

Coronavirus: Resources, Flu Vaccinations, and More

02/10/2020

By Theo Smith, Communications Intern What is the Coronavirus? The coronavirus is a virus identified as the cause of an outbreak of respiratory illness that

A Look at Rare Disease Listening Sessions with NORD and the FDA

02/07/2020

A Look at Rare Disease Listening Sessions with NORD and the FDA This webinar featured Debbie Drell, Director of Membership, at the National Organization for

An Inside Look at the NHC’s 2020 Health Leadership Conference

02/06/2020

By Katie Scott, Senior Manager, Membership Services and Certifications The National Health Council (NHC) is celebrating its 100th anniversary at the 2020 Health Leadership Conference

Evolving Methods to Enhance Patient-Centered Value Assessment

02/04/2020

Morning Consult Op-Ed: Evolving Methods to Enhance Patient-Centered Value Assessment Below is an excerpt from an op-ed published by Morning Consult by Eleanor M. Perfetto,

Patient-Focused Drug Development Guidance: Incorporating Clinical Outcome Assessments into Endpoints for Regulatory Decision-Making; Public Workshop

02/03/2020

The National Health Council (NHC) is pleased to provide comments on the Food and Drug Administration’s (FDA) discussion documents related to Guidance 4: “Incorporating Clinical

Join Us in Raising Awareness for These Causes in February

02/03/2020

Join Us in Raising Awareness for These Causes in February By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and