Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
NHC Comments on ICER Value Assessment Framework
06/30/2023NHC Comments on ICER Value Assessment Framework (PDF) June 30, 2023 Steven D. Pearson, MD, MSc President Institute for Clinical and Economic Review (ICER) 14
Getting to Know Bhriana Smith, Senior Coordinator, Communications
06/29/2023Getting to Know Bhriana Smith, Senior Coordinator, Communications Following is a Q&A to get to know Bhriana Smith, Senior Coordinator, Communications, who began working at
Guest Blog: Raising Awareness, Sharing Knowledge: Celebrating World Bronchiectasis Day July 1st
06/26/2023Guest Blog: Raising Awareness, Sharing Knowledge: Celebrating World Bronchiectasis Day July 1st By: Christina Hunt, BS, RRT, Director of Bronchiectasis and NTM Research and Education
Guest Post: The Focus on Eye Health Summit- Promoting Innovation and Collaboration
06/23/2023Guest Post: The Focus on Eye Health Summit- Promoting Innovation and Collaboration By: Kira Baldonado, MPH, Vice President of Public Health and Policy, Prevent Blindness
June NHC Communications Affinity Group Meeting
06/21/2023June NHC Communications affinity group meeting Event Time: 12:00 – 1:00 p.m. ET Event Location: Virtual This meeting is for NHC members only. Contact Jennifer
NHC and EveryLife Foundation for Rare Diseases PFDD Guidance Book Club
06/20/2023NHC and EveryLife Foundation for Rare Diseases PFDD Guidance Book Club Event Time: 3:00 – 4:00 p.m. ET Event Location: Virtual Please join the NHC
REINS Act Passes the House
06/20/2023REINS ACT PASSES THE HOUSE By: Allen Pinn, Coordinator, Policy Reintroduced in January, H.R. 277 – the Regulations from the Executive in Need of Scrutiny
Guest Blog: Understanding Myasthenia Gravis, a Rare Neuromuscular Disease
06/15/2023Guest Blog: Understanding Myasthenia Gravis, a Rare Neuromuscular Disease By Samantha Masterson, President and CEO, Myasthenia Gravis Foundation of America When graduate student Audrey Getman
PRIDE: The Uprising for Equitable LGBTQ+ Rights
06/13/2023PRIDE: The uprising for equitable LGBTQ+ rights By: Omar A. Escontrías, DrPH, MPH, Senior Vice President of Equity, Research and Programs The LGBTQ+ community faces