Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

NHC Considerations Guide for Patient Organizations

03/19/2020

The National Health Council’s (NHC’s) Considerations Guide for Patient Organizations Developing Comments on a Value Assessment is intended to be used as a tool by

Enhancing the Patient-Centricity of Value Assessment: Pearls of Wisdom from Other Members of the Patient Community

03/19/2020

Enhancing the Patient-Centricity of Value Assessment: Pearls of Wisdom from Members of the Patient Community A list of recommendations developed by members of the patient

Glossary of Value Assessment Terms

03/19/2020

Click here for an infographic on value terminology. Below is a list of plain language definitions of terms used in value assessment. Base case analysis:

Observer-reported or Proxy-reported: Is One Better than the Other?

03/19/2020

By Aimee Lee Russell, Programs Associate On February 24, the National Health Coucil held a webinar to discuss differences between caregiver-reported and proxy-reported outcomes, which are

Getting to Know: Jennifer Dexter, Policy Director

03/16/2020

Getting to Know: Jennifer Dexter, Policy Director Following is a Q&A to get to know Jennifer Dexter, Policy Director, who began working at the National

Coronavirus Preparedness for People with Chronic Diseases

03/13/2020

COVID-19 is causing significant concerns globally. During this webinar, the speakers discussed the ways patient groups can assist their members and other constituents in reducing the impact of COVID-19.

National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov Modernization

03/12/2020

The National Health Council (NHC) appreciates the opportunity to comment on the National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov modernization. Clinical trials

Potential Aid for Industries Impacted by Coronavirus

03/12/2020

Dear Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer: I write regarding prospective federal intervention to support the airline, travel, and other targeted industries impacted

COVID-19 Updates

03/12/2020

The National Health Council is monitoring the rapidly changing situation with COVID-19, also known as Coronavirus. You can follow the Washington Post’s live updates here.