Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

What are Clinician-Reported Outcomes (ClinROs)?

09/26/2019

What are Clinician-Reported Outcomes (ClinROs)? By Aimee Lee Russell, Associate, Programs On Thursday, September 12, John Powers, MD, FACP, FIDSA, Professor of Clinical Medicine, School

Member Spotlight: FH Foundation

09/24/2019

Member Spotlight: The Familial Hypercholesterolemia (FH) Foundation By: Katherine Scott, Senior Manager, Member Services and Certifications The FH Foundation was founded in 2012 by their

What are Clinician-Reported Outcomes (ClinROs)?

09/20/2019

COA Series: What are Clinician-Reported Outcomes (ClinROs)? This webinar featured John H. Powers III, MD, FACP, FIDSA [C], Professor of Clinical Medicine, George Washington University

Getting to Know: Katherine Scott, Senior Manager, Membership Services and Certifications

09/19/2019

Getting to know: Katherine Scott, Senior Manager, Membership Services and Certifications Following is a Q&A to get to know Katherine Scott, Senior Manager, Membership Services

Back to School with the NHC: Patient Community Training on Value Assessment

09/17/2019

By Aimee Lee Russell, Associate, Programs This training was funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (8620-NHC). On Friday,

Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and Drug Administration

09/16/2019

Dr. Eleanor Perfetto, NHC Executive Vice President, Strategic Initiatives, co-authored a paper titled, “Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and

Member Spotlight: Servier U.S.

09/09/2019

By Katherine Scott, Senior Manager, Membership Services and Certifications Servier Pharmaceuticals is a commercial-stage pharmaceutical company with current treatments for patients with acute lymphoblastic leukemia

NHC Comments on Value Assessment Methods for Single or Short-Term Transformative Therapies (SSTs)

09/06/2019

The National Health Council (NHC) is pleased to provide comments on the Institute for Clinical and Economic Review’s (ICER) solicitation for feedback on the, “Value

Patient Community Training on Value Assessment

09/06/2019

On Friday, September 6, 2019, the National Health Council convened a training for patients and patient organizations to learn about value assessment. Read the Executive Summary here.