Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

NHC Standards of Excellence: Board and Governance Best Practices

07/05/2019

In our last post we reviewed the ten minimum Standards of Excellence (Standards) that NHC voluntary health agencies (VHAs), also known as patient advocacy organizations,

Join Us in Raising Awareness for These Causes in July

07/01/2019

By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

What is the difference between health-related quality of life (HRQoL) and patient-reported outcomes?

06/27/2019

What is the difference between health-related quality of life (HRQoL) and patient-reported outcomes? By Aimee Lee Russell, Associate, Programs On June 10, Laurie Burke, MPH,

The National Health Council Rubric to Capture the Patient Voice: A Guide to Incorporating the Patient Voice into the Health Ecosystem

06/26/2019

The National Health Council Rubric to Capture the Patient Voice: A Guide to Incorporating the Patient Voice into the Health Ecosystem The purpose of the

Getting to Know: Jennifer Schleman, Senior Director, Marketing, Communications, and Public Relations

06/24/2019

Getting to Know: Jennifer Schleman, Senior Director, Marketing, Communications, and Public Relations Following is a Q&A to get to know Jennifer Schleman, MPS, APR, Senior

NHC Comments on Medicare Part D Reform Legislation

06/20/2019

By Maddie Mason, Associate, Policy Many Medicare beneficiaries, including those enrolled in Part D plans, struggle to afford their medications due to high out-of-pocket (OOP)

Dr. Tanisha Carino Joins 2019 National Health Council Board of Directors

06/20/2019

Washington, DC — June 20, 2019 — Tanisha Carino, PhD, Executive Director of FasterCures at the Milken Institute, was elected to the National Health Council

Member Spotlight: Community Pharmacy Foundation

06/17/2019

By Kelly Garrity, Senior Director, Membership Services and Development The Community Pharmacy Foundation (CPF) is a national non-profit organization that provides grants and funding for special projects

Member Spotlight: Pulmonary Fibrosis Foundation

06/13/2019

By Kelly Garrity, Senior Director, Membership Services and Development The Pulmonary Fibrosis Foundation (PFF) serves as the leading patient advocacy organization dedicated to identifying effective