Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Surprise Medical Billing Update

02/24/2020

By Maddie Mason, Senior Associate, Policy Surprise medical bills, which are unexpected medical bills that come after someone with insurance inadvertently receives care from an

Patient-Journey Mapping Toolbox

02/21/2020

Patient Experience Mapping Toolbox Understanding the patient’s journey with disease is critical as it enables understanding the context of the patient experience, the natural history

PFMPD Webinar Series: Rare-Disease Listening Sessions with NORD and the FDA

02/20/2020

PFMPD Webinar Series: Rare-Disease Listening Sessions with NORD and the FDA By Aimee Lee Russell, Associate, Programs This blog highlights the first webinar in our

Member Spotlight: Epilepsy Foundation

02/18/2020

By Katherine Scott, Senior Manager, Member Services and Certifications For more than 50 years, the Epilepsy Foundation has shone a light on epilepsy to promote

NHC Comments on Transparency in Coverage

02/13/2020

By Maddie Mason, Senior Associate, Policy The National Health Council (NHC) submitted comments in response to the Department of Health and Human Services’ (HHS) proposed

Consent Designed For Patients By Patients: A New Consent Standard For Patients Participating In Life-Saving Research

02/13/2020

Consent Designed For Patients By Patients: A New Consent Standard For Patients Participating In Life-Saving Research Event Time: 2:00 p.m. ET Event Location: Webex This

Observer-reported or Proxy-reported: Is One Better than the Other?

02/11/2020

Observer-reported or Proxy-reported: Is One Better than the Other? Event Location: Webex This webinar featured Laurie Burke, MPH, Founder of the LORA Group, LLC, C.

President’s 2021 Budget Proposes Significant Cuts to Health Care

02/10/2020

Statement by Marc M. Boutin, JD, Chief Executive Officer The President’s 2021 budget, released today, aims to greatly slash spending on health programs on which

Coronavirus: Resources, Flu Vaccinations, and More

02/10/2020

By Theo Smith, Communications Intern What is the Coronavirus? The coronavirus is a virus identified as the cause of an outbreak of respiratory illness that